Wow, I have been getting eye twitches for years and always assumed it was me being very stressed. I have only had my "N" dx since March. I don't have any other things that I think of as being cateplexy so far. Anyone out there develop cateplexy later/after the fact? I have been noticing when I take my Xyrem & try to do a short game or email on computer, my wrists go limp repetitively- but I figure that's from the Med? What do you think?
HappyHappy

This is so strange. My Doctor told me I didn't have the catalepsy. But I never thought to mention to him about the twitching eyes and the mouth and tongue thing. I didn't think it had anything to do with (N) because like a lot of you I thought it was a full body collapse.

I get slurred speech about 5 minutes before I pass out. I used to be an eloquent speaker.

I am not a laugher, and I agree with you all - cataplexy does not have to be whole body collapse. I get tongue and jaw paralysis too, is your dr a neuro doc? Why doesnt he thinkit is cataplexy?

Hi Naney Jane
I don't know why he assumed I didn't have the cataplexy. However I never told him about the eye twiching, My face muscles my tounge ect I thought it was not related. Or can they tel when they do the sleep study?

I forgot to mention that my Doc isn't a Neuro but a sleep specialist.

Are you sure you dont feel some kind of stress when this happens? Thats what happens to me if I get stressed or real nervous.
Tell me if you find out more, thanx
Girlwithpearl

OMG dustbunny, my leg drops right from under me sometimes....I do wonder if this is a sort of cataplexy???? What about the sudden staring off into space and you cant move or blink...anyone have that???? The mouth thing is interesting, I dont have that, although I do have the tendency of not being able to talk, it is like someone pushed a mure botton.

I totally do - it IS cataplexy with me! Has it been specifically diagnosed for you? People used to think I was chemically impaired! Isnt that AWFUL?

I totally do - it IS cataplexy with me! Has it been specifically diagnosed for you? People used to think I was chemically impaired! Isnt that AWFUL?

I think it is difficult for people to understand what is going on with us most of the time. For years I was told I was depressed or lazy because I did not want to do anything. it became real when my doc told my husband that I only sleep 2 hours to his 8 hours and that if he wanted to understand what I felt like, sleep 2 hours a night for 1 week and then see if you feel like doing anything! LOL. It was a great way to explain it to someone.

Ok, I dont know if this is good or bad. I also get the eye twitches...but never thought of it being linked to Narcolepsy. How about blured vision? Sometimes my eyes get so blury I just cant see at all. My sleep dr said that was a common effect, anyone get that? So far only my eye gets the twitch and I have only tossed my hair brush a few times...I think thats all for cataplexy for me thus far. Does anyone know if it will get worse? Can you all still drive??

I do get blurred vision, but like you I would not think that this is related, but I guess it could be. It is like looking through cotton and it can get frustrating. I just sit still for a few minutes with my eyes closed and it goes away. How long is yours lasting for? I dont get the eye twitching thing, although I do remember that from many years ago and the eye doc said it was from stress or lack of sleep because my eyes were tired. To say the least hu?

ingassleep, my blury eyes last for just a few minutes..maybe 5-10 at most and I can usually shake it off or close my eyes and it will go away a little faster. I have read that those can also be signs of N. Yuck.

It seems so many things are Narco, kind of a funny thing, try finding something that is NOT related to Naro. LOL. Everything is so weird, but oh how it makes sense now! What else do you do that is weird.