I strongly dislike the new format for this site. I can't overstate that, but my need to verbally splurge has overtaken me so I thought I'd give it a go, general post-wise. Still can't do regular small update...it's been weeks since mine was relevant but I can't find a way to change it. HeySo...
....and 5 mins typing in and poof all my words vanished. Thought this was supposed to fix that???
Still battling allergies. So many of them, one after another after another after another after another after another after another after another since Jan / Feb time and these are just the times of anaphylaxis. Most foods now on the banned list too, and I can't go outside much now as something out there (pollen we think) has triggered 2 episodes...the latest last night after spending time in the back seat of a car next to a friendly boxed up small almond tree. Got to my parents and reached straight for the adrenalin.
Day to day life ain't easy right now. I've had to stop, cold turkey, 4 of my high dose medications and cold turkey ain't fun. Just working my way through the last of the latest episode. I'm stressed, surprise surprise, so don't feel like eating much with is good as there's not much I can eat safely.
As well as all this work goes on at a blinding pace on the cause of my health problems. I'm bouncing around between assessments, forms, people trying to get to the right help. It's exhausting, but I think I'm close...then the real hard work begins. Yay. But somehow I don't think that'll be long, just reaching the right person/modality.
I'll admit I'm in my own little whirlwhind of a world right now. I have even less strength and stamina, mentally and physically, but my mind is pure, strong in it's knowledge even, and I'm holding on the best I can. So many other weird things happening, too much to describe. But I think and hope so much I'm in the 'other side' whirlwind; moving through the start, into the calmer eye of the storm and now back out through the wilds to whatever is on the other side. And I have to have faith somewhere it's a 'good' other side, but will I recognise it? Thoughts for later. Just remember I'm holding on the best I can right now.
Is it any wonder I vanish into a world of papercrafting for a bit most days? Card making, it turns out, is shockingly soothing to the mind and soul, so I'll be doing more of that! My pinterest posts are growing, that's for sure.
Love and hugs xoxoxox
...now how to actually this....????
Hello, I am looking for a myofascial pain pen pal, someone I can write to and hear back from, who has what I have and understands. It is very hard to be in the real world and try to describe what this condition is and how it feels. I have daily pain on the sides of my head and top of my head-cervical-, and, it often, flares. Despite this, I walk 8 miles a day and exercise so people, my friends,...
Hi everyone, It has been awhile since I posted anything. I hope everyone is having a nice summer so far. This is going to be long but PLEASE KEEP READING. I will start with the good news. I am pretty much 100% better. I haven't felt this good in over 3.5 years. It has been an extremely long and painful journey but now I can honestly say that I am doing great. Before I explain what finally...