My 73 year old mother was diagnosed with MDS about 30 years ago, and has been living with low platelets since her diagnosis (levels of approx 75,000). She has always had a tremendous amount of energy despite this. Over the last few months, her platelets have been dropping steadily (her doctor says she is making platelets but her body is destroying them-an autoimmune thing), and they have not been able to do anything to keep them stable. She has had platelet transfusions about 4-5 times since April; last week her platelets were down to 8000 within a week of her last transfusion. Nothing seems to be working. Any suggestions on new treatments? They have tried Gammagobulin transfusions and an injection of some sort.
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