im so sorry that youve had MG since age 12! its amazing and very unheard of. i was just diagnosed with MG at age 17, and im having a hard time dealing with it. i cant imagine being 12 and having MG. well any ways have you tryed the prednesone treatment with the help of mestinon? i was treated with this and it has helped me alot. i had all those symptoms, now that ive had a couple months of treatment hey have gone away but i still cant run. o well. write me back with your opinion.

My symptoms fluctuate quite a bit and the meds i am on right now help me. I have a desk job right now where i type and talk a lot and work is going pretty well, i still get easily tired and my hands often seize up but i just try to keep up with my meds and as long as i can stay semi relaxed work isn't usually a problem. I have noticed if i don't get a good sleep the night before i work that is when most of my symptoms begin to flare up. Wish you all the best hope you find something that works for you.

I am so sorry that you were Dx at such a young age! I also have weakness. It seems to affect my right side more then my left. I drop things out of my right hand all the time. My leg weakness bothers me the most and causes me to walk funny some days. My right eye also droops. I am on mestinon and provogil for the exhaustion. I was on prednisone in the past, but I hated the symptoms! I have been out of work since 2/21/07 the day of my thymectomy. I had gallbladder surgery in July and I have had a relapse of all of my symptoms. I am in the process of applying for disability. I want to work more then anything, but I just can't right now. I also have a number of other illness that are secondary to the MG. I am not to the point where I am unable to care for myself, dress myself, etc.
Did you have a thymectomy? What meds. are you on? Have you ever had remission of your symptoms or have they progressively gotten worse? I hope that you had a good day today :)

Sorry to hear of your problems. It is difficult to work with MG but it is possible. I work as a social worker in a hospital. I make sure that I get enough sleep so that I can work. It is a vicious cycle but it is do-able. I hope that you are able to find something that you can do. Try to go to school for specialized training so that you can find a job that is within your capabilities. It is important for you mentally to be a productive person even if it is only part time....it is something. Take care of yourself and always remain positive. It really does help.
Becky

I'M SORRY TO HERE ABOUT THE SYMTOMS YOU ARE HAVING. I HAVE THE SAME SYMTOMS RIGHT NOW, VERY FRUSTRATING. I GET THIS WAY WHEN I HAVE A FLARE UP OR HAVE NOT BEEN GETTING ENOUGH PEACE AND REST. I AM NEWLY DIAGNOSED, SO NEW TO MEDS. I WAS NOT WORKING FOR 2 YEARS, WHILE TRYING TO FIGURE OUT WHAT WAS WRONG. SYMTOMS WERE JUST GETTING WORSE AS TIME WENT ON. WOULD GET WINDED JUST GETTING MYSELF AND THE BOYS DRESSED. SIMPLE THINGS WERE AND STILL ARE QUITE A WORKOUT. THINGS ARE BETTER WITH REST THOUGH.TRIED TO WORK AGAIN AND MADE IT A MONTH AS AN INSTRUCTOR IN A COSMETOLOGY SCHOOL. I GOT TO WHERE SYMTOMS WERE WITH ME NON STOP, NO MATTER HOW MUCH I RESTED(PJ ALL WEEKEND AND IN BED) I WASN'T ON MEDS YET, STILL WAITING FOR THEM TO WORK. I AM WAITING TO HEAR BACK FROM SSD AND HOPE TO BE ABLE TO WORK AGAIN WHEN THINGS GET UNDER CONTROL. I WISH MY BOYS WERE OLDER SOMETIMES. HAVE YOU TRIED IVIG OR PLASM. IV TREATMENTS? I THOUGHT I WOULD TALK TO MY DOCTOR ABOUT THIS, SINCE SHE DOESN'T WANT TO DO A THYMECTOMY YET. YOUR IN MY PRAYERS.