Hi everyone, I hope everyone is well or getting there. I've been going once week for plasmapherisis. I'm currently taking 30mg pred. for eyes my left eye is off center the double vision is still there but seems to be getting better and150mg of clcosporine along with 60mg of mest or pyridistigmine every 4 hrs. all together feelng stamina and strength last way way longer then past weeks ago. MY DR. has told me that there is a 2cm growth where my thymus should Nt be becuase I had it removed when i was 18 now 36. The only way they will be able to tell for sure what it is.is if I have it remove,it may be scare tissue. the therastic surgeon who wants to do the thymectomy said I can not have a trandermal thymec because i have had it remove through the sternum. I'm scared and don't want to go through that pain again. though the dr said it wouldn't be as tramatic. IT took a good six years before the scare wasn't that noticeable. I now this is silly but why cant they just poke a hole in my chest and take a look to see what it is exactly with a camera. OK back to reality I just was wondering if anyone here has ever had 2 thymecytomy's and how do they feel now. I know it helped me before I just don't know iF Al of this mg came back because of me having a baby,but that was 15 months ago. I JUST DN'T KNOW ANYMORE. SINCE THERE IS A LITTLE ONE I HAVE TO CARE FOR AFTER IT ALL IS SAID AND DONE. I think they want to do the surg before xmas, but should I give the plasma more time to work and the meds before opting for surg. Hope this makes sense.
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