I have had MG for a year and a half. initially started with ocular then prog. to general. Been under control with prednisone tapering down over time with a flare now and then, at which times I could raise my dose up some for a few days and it would get back into control. This last week I presented with the worst dbl. vision since the onset of the disease. I have raised my prednisone up to it's highest levels since I began taking it (40mg per day) for about 4 or 5 days with no releif. Also the Mestinon is doing nothing as it used to help somewhat with the vision. Is this something to expect at times, as I have had good results quickly in the past? Symptoms seem to be confined to my vision this time. Thanks. Jim
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Background: I am about 8 months newly diagnosed with ocular MG. My symptoms were managed until a month ago, when I had a relentless week of constant double vision. Felt like I was walking around cross eyed. My daily dose of Mestinon was doubled to 120mg 3xs a day. It only lightly suppressed the issue. And so I began my first ever course of prednisone. I am barely 2 weeks in, on 20mg a day...
I was just diagnosed 3 weeks ago. At 1st I was really relieved. I still am very relieved and excited to start to feel better. I just started on testimony 3x a day. At 1st I felt better. Now I feel like Mestinon is like a morphine drip. I take it, feel relief for a while and then out of nowhere, BOOM, I get hit by a train, repeat cycle. My arms feel like they are going to fall off, my legs feel...