Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
I was diagnosed with Ocular MG in April 2007. I originally had double vision with some sagging of the eyelid. If I looked at a person they had two heads, I had to wear an eye patch. The Neurologist started me on Mestinon. This helped but I still had double vision on the peripheral, good vision straight forward. Keeping my head straight forward, if I look up, right, or left I would have double vision. If I look down, I would have some slight double vision and eye strain when reading. I could live with this, Tri-focal glass were out because the lower lens would be double vision. Bi-focal worked because I can have the lower lens high enough to get out of the double vision area. Its like tunnel vision in a way. In Aug 2008 my MG generalized and my ocular went back to complete double vision and I could not open my eyelids. The Neurologist started me on Prednisone & Cellcept, then IVIG. My ocular vision went back to the tunnel vision with peripheral double vision. My Neurologist thinks that my tunnel vision is permanent. Has anybody experienced this tunnel vision?
deleted_user
There is nothing known that will get rid of peripheal double vision. Be thankful that forward sight is good. The treatments you mentioned are for generalized MG (which I have) and are a waste of time and money trying to treat ocular alone. I have had ocular for 8 years and am satisfied with low dose daily prednisone which gives me good forward vision. I take ginger and occaisional Zantaq to counteract any minor side affects. This year the MG attacked my tongue (life threatening if it goes to throught) and I am on all the meds you mentioned. My ocular has not changed. I am feeling great, and will probably end up with a daily Cellcept (thank goodness there is a generic!) for the rest of my life. I may need another IVIG maybe once a year. I pray that your ocular does not generalize.
deleted_user
Your symptoms are just like mine, with the double vision, if I look up it is double, down a little it clears up. I have a prism, but was just told the bloodwork for myathenia gravis was negative?? It is preplexing,maybe a head trauma, or undetected stroke. I wonder if it will ever clear up. I have been referred to another neuro opthalmologist.
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