Here's the deal, I have been seeing my neurologist for about a yr now, only diagnosed for about 4 months. I have been put on mestinion. When I ask the doc if I can take an xtra pill on bad days he says no. He says my body will eventually get used to the mestinon and then it wont work anymore. I also told him that I feel like my quality of life is not as good as I would like it to be and isnt there anything else we can do besides the mestinon. He says no. I like this dr and hes very thorough and very nice. I am just wondering if I might benefit from seeing another dr who specializes in mg. that sounds ridiculous, i guess im asking for those of u who have been living with this disease for awhile, if my nuero can really handle this. He wont even give me a prognosis, he says u just never kno.
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