I am my mother-in-laws caregiver. Approximately 4 years ago, my mother-in-law was diagnosed with MG. Since then she has spent many many months at various times in ICU with severe Myasthenic Crisis having to be intubated etc etc. Her doctors have told her that her MG is extremely aggressive. They did a thymectomy on her immediately after diagnosis following that were months upon months of plasma feresis(sp) and after they exhausted that they went to IVIG and she is on Mestinon and Pyrostigmine and was put on Imuran as well and Cellcept. All in hopes that something would slow the ravage of the disease. Here is what I am coming to you with. She works as a police dispatcher when she is able to talk/function. We have reason to believe from an article she once found that MG can sometimes be aggrivated by "Black Mold" exposure. The building that she works in has a back room that it has been confirmed that its laden with black mold. She has had many many years of exposure to it. The ventilation is very poor there is no ventilation system to take the air that builds up in the building to take that air outside and bring in fresh. The air in the building basically just recirculates constantly never having any fresh air brought in. So my question to all of you out there is.. does anyone have any information. websites, testimonials on whether or not her long term exposure to black mold could account for her diagnosis of Myasthenia Gravis? Or would anybody know who I could contact to visit with to discuss this issue?Any help will be greatly appreciated very much. Please respond asap.. its urgent that we get some answers.
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