
Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...

deleted_user
I want everyone to know that I had a thymectomy on December 4th. I was able to leave the hospital on December 5th. I only had a chest tube for 1/2 day. I have gone from severe, sever MG symptoms to what they call spontaneous remission. Since i had my thymectomy i have only taken Mestinon twice. I feel so much better my double vision is gone, my muscle weekness is gone and i am able to get out and walk around without problems. My doctor has told me to get out and walk around as much as possible. I have a 7 inch scar down my chest but i will wear it with pride I am a survivor of MG. I have come from not being able to do anything to being a new person. Is it wrong to feel like a kid again. I ate nuts today I haven't ate nuts in so long i almost forgot what one tasted like. Not only that I chewed gum and ate tomatoes. I feel like a kid discovering life all over.
y husband and I are now planning a trip to Alaska in May a trip we were putting off because of my MG and my inability to do anything. My remission may not last forever or only a few months, but i will live each day to the fullest. If any of you who are considering thymectomys have questions ask away i want to share my experience i want people to know it really isn't as bad as i thought it would be. I had alot of fears but you know what it wasn't as bad as i thought it would be. I have hardly even taken pain meds. Aleve is a wonderful thing and it works just as good as prescrition pain meds.
y husband and I are now planning a trip to Alaska in May a trip we were putting off because of my MG and my inability to do anything. My remission may not last forever or only a few months, but i will live each day to the fullest. If any of you who are considering thymectomys have questions ask away i want to share my experience i want people to know it really isn't as bad as i thought it would be. I had alot of fears but you know what it wasn't as bad as i thought it would be. I have hardly even taken pain meds. Aleve is a wonderful thing and it works just as good as prescrition pain meds.
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I'm trying to exercise daily. I was doing fairly well until I sprained my ankle 2 weeks ago but now I'm getting back on the horse. Today I walked over a mile with my arm weights that are about 22lbs total. I was out of shape and it was hard on my arms. I also did my 30 situps. I'm also going to drink a lot of water and try to eat healthy. I do tend to have a sweet tooth but I'm cutting...
Magda
im having a thymectamy in like a month. do they feed you threw a tube??????
remission has beem nice until i got bronchitis and as soon as i got sick i started having proplems again, but now that i am getting better my mg syptoms are going away again. Good luck on your thymectomy
Some day's my body hurts, it hurts to lift and move everything and we realize positivity is all in the mind and outlook. This can permeate the spirit with dedication to this mindset. After much practice a real sense of hope and a real sense of a newly defined me with a new place in the world as an active participant has returned. If you asked me a year ago would I be here I would say no. Don't get me wrong, I hate the pills, so I switched to Target where the bottles are cute and easy to read, and I don't feel so dependent. I dress nice and get my nails done. I drive a nice car now. I have thought about the things I really want to do and be and I am becoming them. It can be extraordinary, when extraordinary things happen.
I just wanted to say, wear your scars proudly and don't hide them. It shows that you are alive and beating this.
Mestinon,Imuran,Prednisone,Potasio,Iron,
Plasmapherises and a bunch of other meds. I keep on having all the symptoms, but, at least I can breath better. You are one lucky person, Good Bless You!! I still have to be extremely careful because I get short of breath easily. Even if I laugh to much. CONGRATULATION!!!!! I hope you keep on doing well!!!