Wonderful news...Hope you continue to do better every day! Enjoy everything that you can now do again. Becky

Congratulations!! I was so worried about you! How wonderful! You can finally hold your baby in your arms and enjoy your life! God is GOOD!
Magda

a test tube?
im having a thymectamy in like a month. do they feed you threw a tube??????

A Chest tube is for training the blood off the chest it's a insicision in the chest with tubes that drain. I had a liquid diet for the first night and then after that i was on a regular diet no biggie.

remission has beem nice until i got bronchitis and as soon as i got sick i started having proplems again, but now that i am getting better my mg syptoms are going away again. Good luck on your thymectomy

I have very severe MG that is uncontrolled with three types of meds. They want me to have a thymectomy within about 2-3 weeks. I am excited, & yet a little nervous. I'll be having a partial sternotomy with a 3-4 day stay in the hospital. Why was your stay so short? I have 2 boys 8 & 5 yrs. old, I just want to be able to run, jump, & play with them again the way that I could when my 8 yr old was little. Any advice? How are you doing now? I read on at the bottom and I pray that you are doing better & back in remission. I'll just be happy to have less meds,no more IVIGs, & feel better. God bless you & your family!

illness seems to bring on my MG it probably always will. i had broncitis again and the symptoms game back again. as long as i stay well no MG. my stay was so short because my doctor just didn't feel i needed to be there and since i was up walking around demanding things. like real food not hospital stuff he figured i would be able to manage better at home. i had a full sternotomy and you know i feel good about it i knowe when i've over done it my chest gets sore but hey i am doing good.

Congrats! I'm new to this support group. i had a thymectomy over 20 yrs ago and have been in remission for over 20 yrs. i had it when i was 20 and am 45 now. i have epilepsy also. so i have to deal w/both. i only have to take meds for the epilepsy, so i'm thankful for that. I read over some of your chats and i'm thinking i may have to talk to dr and see if my MG may be sneaking back.

MY MG took so long to diagnose, I was about half dead when a doctor other than my nuerologist finally diagnosed it, from a blood test specific to the disease. I took my most recent blood test to an OD out of desperation who read the results and referred me to a competent nuerologist. I had a thymectomy scheduled immediately after routine MRI's and CAT scan's that ruled out tumors, blood test's for thyroid were repeated and drug side affects ruled out again, this time quickly and competently. Mind you I live on the westside of LA surrounded by fabulous healthcare. I am still a little furious. All the wasted time, health, money and the bilking of my excellent insurance. If you live on the Westside of LA email for more specific details of my doctor journey. I finally received excellent care in Burbank and was in remission for 12mos, no symptoms, after a thymectomy through my chest. The beast returned and is controlled with Mestinon time release and regular and Amantadine. I am, finally, 4 years later, no longer hidding my chest scar, on an everyday basis. I have even fantasized about tatooing little flowers, maybe smalls near it. Who else can wear such a scar but myasthenic's?
Some day's my body hurts, it hurts to lift and move everything and we realize positivity is all in the mind and outlook. This can permeate the spirit with dedication to this mindset. After much practice a real sense of hope and a real sense of a newly defined me with a new place in the world as an active participant has returned. If you asked me a year ago would I be here I would say no. Don't get me wrong, I hate the pills, so I switched to Target where the bottles are cute and easy to read, and I don't feel so dependent. I dress nice and get my nails done. I drive a nice car now. I have thought about the things I really want to do and be and I am becoming them. It can be extraordinary, when extraordinary things happen.

Hi, it's me again. i just wanted to say something about the scar. It never really bothered me b/c i had open heart surgery when i was 2 1/2 yrs old, so they pretty much open me up along the same scar i had frm my heart surgery. i have them all over my body frm the heart surgery. i wear them proudly. i actually use them as a conversation piece. People are amazed when they hear about my surgeries and want to know more. I don't feel like i look hedious.
I just wanted to say, wear your scars proudly and don't hide them. It shows that you are alive and beating this.

Thank you for sharing your story. I was diagnosed w/MG about 2 months ago. Reading your experiences gives me hope.

I had a Thymectomy in November 2007. When I woke up I was in ICUnit with tubes everywhere.I was there from November 26 to December 18. After that I was having alot of problems with my MG. On New Years Dec.31 My oxigen level went down to 50%, I end up back in the ICUnit. I don't know what happened in the ambulance all I remember was my son,17 and my daugther,20 picking me up from the floor and waking up in E.R, After that I kept going in/out the ICUnit(5 times) I've been home since March,But,I am taking
Mestinon,Imuran,Prednisone,Potasio,Iron,
Plasmapherises and a bunch of other meds. I keep on having all the symptoms, but, at least I can breath better. You are one lucky person, Good Bless You!! I still have to be extremely careful because I get short of breath easily. Even if I laugh to much. CONGRATULATION!!!!! I hope you keep on doing well!!!

Nandid im so happy for you and the fatc that you are doing so much better. My father is the one with Myasthenia. He is 58 years old he was always the strong one from the family but now he is just really sick. He's on dissability but he feels useless. i cry every time i think about him. He has visual myasthenia. You got better with the surgery do you think he will? The doctor is thinking on puttin him on steroids soon. The side effects are servere im scared.. and i feel so alone. My mom isnt taking it well either. My sister is the most informed about the illness we are all lost and have no idea what to do. Please help me.. help us.. help him..