hi everyone, my name is liana..i am new here and way happy i found this group...after years of knowing something was wrong, but chalking it up to other things i was finally diagnosed with MG in may 2006...i tell my family & friends see i'm not nuts i'm just another flake LOL...they originally had all different reasons for my symptoms..they even thought i had MS...it wasn't until we were doing fertility treatments & i was driving 2 hrs each way 4-5 times a week that my body went soo wacky they had to look closer & find out what the heck was wrong..i must have drove that trip with one eye closed to see the road i don't know how many times..as it turns out i do not have a thynoma, but a remnant of the thymus shows on my scan...3 neurologist later and 2(who are near each other & share opinions)want me to have the surgery and the other(whom i really like, but is 2 hrs away)doesn't feel surgery is the way for me...so right now the mestinon helps like 80-90% as long as i know my limits & rest...i would have jumped on the surgery banwagon had they wanted to do the less invasive way since i don't have a thynoma, but they wont do that as they say they need to get it all...my cousins hubby and most people i have met who have had the surgury are not in total remission, still take meds and have lots of problems...so im very reluctant to do the surgery even though my neuro says my age & the fact that i do well with meds are a plus for me to have a good out come from the surgery...wow i'm rambling LOL i can be a motor mouth(my nick name as a child LOL)...anyway just wanted to say hi and kinda fill you in...hope everyone feels good today...liana
Posts You May Be Interested In
I'm trying to exercise daily. I was doing fairly well until I sprained my ankle 2 weeks ago but now I'm getting back on the horse. Today I walked over a mile with my arm weights that are about 22lbs total. I was out of shape and it was hard on my arms. I also did my 30 situps. I'm also going to drink a lot of water and try to eat healthy. I do tend to have a sweet tooth but I'm cutting...
well, im new to this group and I have been wondering if anyone had these issues before they came out. My current situation is that I'm in a relationship with a man...as of right now. I have always been attracted to women and even been in relationship with one before when I was younger. The last 3 relationships I have been in were with Men. I was even married to one...he always called me a...