So it has been a month of my fun roller coaster ride since I got out of the hospital and 2 months since diagnosis. I started Prednisone 1 month ago and at first felt there was no stopping me, my energy was through the roof I had decreased pain and much better strength. Problem is I am sooo agitated I really can barely stand myself (my poor husband and kids) By the night I end up taking zanzax just to not drive everyone else crazy. I started imurran with little side effects nov 6th (100 mg) 1 in am, 1 in pm. Now dr bumped it up to 200 mg (2 in am, 2 in pm) problem is since I doubled it I feel AWFUL!!!! I feel like I have the flu and I have very little energy. My joints hurt (which is frustrating because I finally have my fibro pain calmed down now it feels like it is back to 10 on pain scale). I feel depressed and like i'm never going to feel good again. The good part is I have less and less "bad eye days" and I am breathing much better. My leg and arm strength is much better but the overall feeling of fatigue and malais, depression and pain is awful. Please tell me this is a short term effect and my body will get used to this dose of immuran. Also I am so sad because I thought I wasn't gaining weight or puffing up from the pred. but 2 weeks into it my face started to change and now I have full blown moon face. I haven't gained weight but I have most definitely chubbed up in the tummy area ;( . It is so hard to watch yourself change and feel so ugly and fat and smelly (becuase I sweat NON STOP ) Oh ya I have horrible insomnia too. Please tell me it will get better. I feel like 3 steps forward 2 steps back. =(
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