I have to quit my mestinon today for the single fiber EMG that I will be receiving at Duke next week per my neuro's orders. I'm a little scared about this and wonder what will happen to my body. Does anyone have any experience with quitting the mestinon? Did the symptoms return right away? I have a five year old to care for and I have a whole slew of other diseases. I can tell when it is time to take my mestinon without a clock around because my symptoms start up. My main problems are my legs, then my arms, speech slurred and finally double vision. My neuro says that my biggest problems are the breathing muscles. Just getting over bronchitis and pneumonia, that one scares the hell out of me. Any advice would be greatly appreciated. When I turned up positive on the blood test, I did not believe that I had MG. A few short months later, I was collapsing all over the place. It's just scary how rapidly the symptoms came on. Thank you in advance for any replies.
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