Barbara657,
I apologize if you already posted on why MG might be a consideration wrt breathing problems.
But if breathing problems are your ony symptoms....then MG is far down on a list as possible diseases.
If it turns out you do have MG....that is a good thing that you are diagnosed. There are many ways available to stabilize/manage MG....
I wish you the best on Thursday...

I was just diagnosed with MG and I am also having breathing problems along with droopy eye and mouth and muscle fatigue.

I also run out of air when I talk or try to sing with the radio. I just went through a number of tests last friday and am waiting for the results.

I don't really know what is in store for either of us but know that you are not alone. I'll keep you in my daily thoughts and prayers.

I first went in with a droopy eyelid. And extreme weakness. I could sleep 11 hours a day. After I would take a long nap I could get up and do more. Then back to the same pattern again.

I get "winded" when I climb the stairs or walk too far/fast. Sometimes it is hard to fill my lungs with air. I sing at church but can't hold my notes like I used to. The IVIG helps. If you find you do have MG do your research and find a Neurologist who works with you. My first Neuro didn't want to give me ANY meds. He thought the Thymectomy would be enough. I now have a Neuro who prescribed IVIG, and TOGETHER we decided to try just about EVERY possible medication available. Unfortunately, I am very sensitive to side effects, so I am only taking IVIG. I keep hoping for a medical breakthrough that will cure this horrible disease. Try to stay positive, get support, and live your life to the fullest.
Best to you,
Magda

I am not sure if I can help anyone, I just wanted to share something with all of you. I don't have MG but my mom does. She was diagnosed when she became pregnant with me. I am now 25yrs old and have seen my mom go threw alot. I signed up for her because she needs some support right now. I don't know what all of you are going threw but I have helped my mom for years. Some days are good and some days she stays in bed all day. My mom experiences the blur vision, shortness of breath and all of that. I want all of you to know that you are all strong and you can get threw this. I wish you all the best. And hope that you can help my mom with some support. I think that she needs to talk to people who share what she is going threw. I wish you all the best.

I have been dx with MG foe 5 months and I also get "winded" at times when I talk. Especially if it is at the end of the day when the fatigue is worse. It is always better in the am. I am hoping when all of the meds I am taking "kick in" in around 8-9 months it will improve. I have seen a small amt of general improvement overall with all the meds. Last summer I did absolutely nothing but sleep and work.
I hope this helps.

Barb, Have you gotten your results to your test yet? Did your Doc do an antibody test? Is this the first time this has happened with your breathen and talking? If you don't mind me asking approx how old are you. Just trying to help you out w/what information I have. Thanks so much.

I too have breathing problems! Recently I have difficulty getting a full breath and it starts in the evening. Sometimes I'm short of breath & think "one of these nights I'm not going to wake up". I also have a croaky hoarse voice that changes during the day. I used to have only a ptosis to my right eye and now I'm having some ptosis to my left eye. I feel self-conscious because I look like someone on drugs & have a whiskey voice. Looks are so deceiving!
Do other people with MG have these similar problems?

I too would like to know how Barbara657 is doing. Hopefully no news will be good news for her.

My symptoms are a wide variety. My most troublesome are that I have shortness of air and I also gasp for air at times, even when there is no activity. I have droopy eye in the right eye but have recently experienced weakness in the left eye. No obvious drooping in the left eye but definite weakness, like it's becoming more difficult to keep my eye open. As the evening draws near, my right eye is almost closed and the left eye feels so heavy (like now, it's really late,,I can't sleep). I don't sleep well. I have night sweats and toss back and forth all night. I'm lucky to get 3-5 hours of sleep a night. Some say MG is a painless disease but I feel pain. When your muscles become weak and you use the stronger muscles to compensate, I know my body feels so run down and aches everyday. I'm not trying to bring everyone down but I was diagnosed just this past December. I knew for quite a while that I had some problems but couldn't figure it out. A neuro found the problem in my blood work along with my symptoms. I'm taking mestinon 4 times a day, she thinks I just need the surgery but is going to send me to another neuro to get a second opinion first. I would prefer to use every other option before considering surgery. Does anyone think that surgery would be the best option?

Peacequeen,

To answer your question about surgery, I think it is worth it. The thymectomy is the only option that has the potential to be a permanent solution and I, personally, would be disappointed in myself if I did not try it. I don't know that it improved my symptoms any, but I was on a steep decline right before my surgery and after a difficult two weeks of recovery, I stopped declining. It was much easier to find treatments that work when my condition was more consistent.

Another thing that my doctor has said is that breathing problems count as a "crisis" and if you have trouble breathing, you probably need something much more drastic than mestinon. Mestinon helps, but it's not enough. You should definitely see another neuro that has more experience with this condition.

Thanks Mara, that explains the mild effect mestinon has on me. It's not really helping much. My breathing problem is getting worse. I have numerous appointments with several of my doctors this coming week so hopefully I can get some things resolved or at the least learn more about what is to come. I really appreciate your feedback.