I have to admit I have been reading this site since I was diagnosed and you all have helped me a great deal. I recently decided to join because I wanted to be able to contribute and ask questions. I was diagnosed in Feb of 2013 so this is still very new to me. I am lucky to have already found a wonderful neuro I have total faith in. My problem is I have recently started with a new primary care doctor that started my first visit wanting to change dosages and plans my neuro and I have agreed on. This was after telling me I was too fat and needed to lose weight. I explained the weight gain was due to the high dosage of prednisone and she proceeded to tell me the dosage was way to high and I needed to decrease it. This dose allows me to breathe changing it at this point isn't an option, plus that's my neuo's decision. Obviously I need a new primary care doctor, but how do you find one that understands MG.
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I imagine this would be the goal for all of us. It certainly is for me and recently, even though I had a setback, my Neuro stated that she believed MG would just go away on its own at some point. I asked her for more information as to why this was her belief. She did say that we can be hopeful in my case, which is not everyone. In an email she presented this to me:'Most clinicians feel that there...