Myasthenia Gravis Support Group

Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...

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deleted_user
deleted_user
deleted_user
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Hi I am new to this and don't think I have my Question in the right place .I am looking for advice.

My mother ,who is 76 was diagnosed last June with M.G .She is going for IVIG tomorrow.
Have you any advice as to what food is to be taken or how much water she should drink before or during treatment. Any other suggestion would also be apprenticed

Thanks
catnap2
catnap2
Hi teacosy, it seems more people see stuff that comes up in the discussions area, at least it seems that way to me. I drink 64oz water each day for two days before IVIG and at least 32oz the day of. I take along snacks and crackers and gatorade for during but some people there have family go out and get fast food. The other thing I would say is be sure to mention any reaction or symptom that comes up to the nurses and make sure they decrease the rate if your mom has any adverse side effects. For me the side effects start hours after IVIG is done so I make sure they slow things down the next time.
How many days will she be going?
deleted_user
deleted_user
Hi Catnap2
Thanks for you replay about my mother ,she had her first IVIG yesterday ( drank plenty of water ) it seems to have gone ok , but swallowing was bad first think this morning till the mestinion kicked in . She will be having 5 days I think in total treatment. Thanks again for your replay and advice .
Teacosy
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