hi..I joined this group because my 3y/o daughter was diagnosed with ocular myasthenia gravis, she was on mestinon and is now on prednisone since the mestinon did not work. I am feeling frustrated and helpless because I want to see a change in her. I know it will take time and I should be patient but it hurts to see my baby going through this. I am hoping that those of you who have lived with this can give me some hope and answers to some of my questions.
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