So today I was given the diagnoses of Ocular myasthenia Gravis. I have had a droopy eyelid for a few months and someone at work noticed it. I thought I was having a stroke or had Bells Palsy. I really didn't do much about it for a few months then finally went to my eye dr which it was my yearly visit anyway. He definantly noticed it but didn't think it was anything visual since my vision had been the same since the year before. So, I waited a bit until it was getting worse. I went to see my pcp and she thought it was a virus so again waited for it to go away Then another couple of months later it was still getting worse. So she booked an appointment with a neurologist thinking it was Lyme Disease. So expecting them to just tell me I was getting old they throw this MG thing on me I was concerned and working in a medical facility I asked away and then googled away. To make a long story short the blood work was negative the MRI was negative for abnormalities (thank god I work at a cancer center so this was a concern) So she started me on Mestinon because of my symptoms. Well it has been about 3 weeks and my eye seems better I started at 30mg 2x daily after a week started 60mg twice daily. Today my neuro called and said since it is working it supports a diagnoses and adjusted me to 60mg 3x daily. And they are setting up a CT for me. SO this is my story and I am a little freaked.
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