
Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.

deleted_user
I was diagnosed a year ago. I had just started teaching six months before the diagnosis. I struggle with energy and all of the usual MS issues. I really need to keep working, but I am not sure how to strike the proper balance. It seems that when I go to support group meetings that everyone has quit their job, it is discourgaing because all the activities they plan are in the daytime. It seems that I am stuck between the MS community and the normal/healthy community, any advice?
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Would that help you?
I quit working in 2001 but that was due to the epilepsly not the MS...and i have to tell you,, im bored to tears...grin..
And i appluad you on your chosen profession...smile.. i have three boys.. and did all the usual volunteer work,,, scouts,, t-ball etc... but to be trapped in a room full of them...uh uh..no way...lol...you are one very brave lady...grin
Like you, I am also a teacher with MS. I was diagnosed around six months ago. I took about three weeks off after my dx and then went back 3 days per week, then 4, and now am back full time. I find that it is really hard to work all five days, but planning for a sub became a lot of work as well...so I'm thinking about possibly part time next school year. I'm also working on a graduate degree, and was 1/2 done with it when dx. I am still working on it (degree) and honestly don't know at this point in time how I will manage both. For now, it's one day at a time. I want what's best for my students and for me, but it seems like they sometimes wind up with the short end of the stick...as do I. I think teaching is particularly difficult to make modifications for due to the nature of the job and all of the hours that are put in both inside the classroom and outside. My principal has been very supportive as have my colleagues and I am very greatful. Still, I need to figure out what I can do to manage to still work and get some badly needed sleep!
Secondly, the people in there in their wheelchairs, etc., was very discouraging. Medicines I dont think we either around when some of these folks were diagnosed or they just didn't take then, or have some different circumstances.
Have to be careful to associate yourself with things that bring you up rather than down. There used to be a chat room on mswatch but they stopped that. Now and again it was nice to go on with questions or to help answer questions for newbies but I found that I couldn't do it all the time - it would make me obsessed with the MS. Balance is hard - I think we have to listen to ourselves for help with that. I'd stick to the normal community the most - and the ms folks when you have the time or the need. Sometimes I think that us "normal ms folks" need to strike up our own communities.
Do what is right for you and your family.