Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
As of Dec. 30 my body entered into what one of my doctor states as a "forced detox" due to getting the stomach flu from my husband. To date I have no Rx medications and the MS symptoms have multiplied. My doc called and said I could readd 10 mg. of Baclofen for the MS at bedtime only. First, it was diagnosed as Secondary Progressive MS and as of Tuesday it is thought to be Progressive Relapsing/Remitting MS. It frustrates me to think there are treatments available to help MS patients and my docs are all in disagreement in the management of it. Any feedback from fellow MS sufferers will be greatly appreciated. Thanks so much -- peace to each of you! ~Jenn7
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I miss traveling with my husband. Has anyone found a specific site regarding cruising for widow/widowers or any sightseeing trips. Not interested in being with couples and kids,,,I realize a cruise ship will have a portion size of families and couples, but perhaps they also put together a part of the cruise ship for groups of widows/widowers????
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A friend sent this to me..As far as I can see, grief will never truly end.It may become softer overtime, more gentleand some days will feel sharp.But grief will last as long as Love does - ForeverIt's simply the way the absence of your loved onemanifests in your heart. A deep longing accompaniedby the deepest Love some days. The heavy fog mayreturn and the next day, it may recede.Once again, it's...
If you're getting symptoms again, why not add the med. back? I guess I don't understand how the stomach flu affects ms medicaiton and why you would have to 'detox'. This might be yet another reason why my doctor put me on Avonex--since it is once a week rather than daily or every other day, if I get sick with the flu or a cold, maybe I wouldn't have to detox. This is definitely a question that I will ask me doctor when I see him later this month. Thanks for bringing this up! You may have helped many of us.
In the meantime, I hope that you are able to get back on the meds. so that symptoms abate.
The best of luck to you!
Based on your other posts, I know you're looking at holistic approaches to manage your MS, but in this case, I think your doctor is doing you a disservice. I should note that I don't believe "detoxing" is at all helpful for treating chronic medical conditions, and am biased in that sense.
Are you having gastrointestinal symptoms with the flu bug you're fighting that are so bad that you can't keep meds down? If so, that's a valid reason to hold your drugs for a couple of days. But think about it -- you've thrown your body for a loop by going from 60mg of Baclofen to 0mg, and now 10mg. You're probably experiencing rebound spasticity on top of your baseline level of increased muscle tone.
When someone takes meds for a condition every day, dependence develops. People get scared when they hear the word, but it has nothing to do with addiction. The body simply has adapted to a certain level of a drug in the body to support a system that isn't working correctly. When you remove the drug suddenly, and without tapering the dose, the body doesn't know what to do to compensate, and in the case of MS, or another chronic condition, symptoms can (and do) become worse.
Holistic and allopathic practitioners have very different world-views. If you have progressive relapsing disease (secondary progressive generally develops over long period of time), disease-modifying treatment options will be more limited -- even in the realm of allopathic
medicine, as many treatments for relapsing remitting disease don't seem to work well. But that doesn't mean that symptomatic meds shouldn't be used to keep you as comfortable -- and functional -- as possible. I'd definately add back your Baclofen. There's no reason for you to be in so much pain that you can'd sleep!
MS is a difficult one to diagnose.