Multiple Sclerosis (MS) Support Group

This community is a place where members can discuss current events and weigh in on what's going on in the world.

1,001 Members
21,478 Posts
0 Online
Brain & Nervous System
/ Multiple Sclerosis (MS) Support Group

what to do when Baclofen quits helping?

deleted_user
deleted_user
Hi fellow MS friends...

Baclofen has been my breakthrough Rx med for for my inconclusive diagnosis of Multiple Sclerosis. Zanaflex helps some too as does Skelaxin. I am to go to Rush-Presb MS Center as soon as the doctors egos get out of their way and coincide with the too many yearly repeated MRI's/CT scans. Any suggestions for how to get my Rush Neuro and other docs to collaborate rather than continuing to wait for proper care and treatment for the MS which just showed up in 05 over other brain and spinal cord damaged caused by childhood physical abuse. Any feedback will be greatly appreciate and connecting with others w MS through DS will be appreciated.

with much gratitude,

Jennifer
deleted_user
deleted_user
When Baclofen stopped being effective for me, my neuro put me on Klonopin. I have to take less of it and it seems to be more reliable for me. As far as getting the docs on the same page, I started insisting on getting a copy of all tests myself and am keeping my own medical file. Some docs like my attitude of I'm in charge of my own care, and some don't, regardless, it has stopped a lot of repetitive tests and I fell it lets them know I'm in charge of my disease. Just some suggestions.

Good luck, Rana
Posts You May Be Interested In
  • Rizen

    Walk a Day

    Posted by: Rizen
    Last Reply: Rizen
    2111
    I'm trying to exercise daily. I was doing fairly well until I sprained my ankle 2 weeks ago but now I'm getting back on the horse. Today I walked over a mile with my arm weights that are about 22lbs total. I was out of shape and it was hard on my arms. I also did my 30 situps. I'm also going to drink a lot of water and try to eat healthy. I do tend to have a sweet tooth but I'm cutting...
  • deleted_user

    I think im a lesbian

    Posted by: deleted_user
    Last Reply: Sebastrue
    3
    well, im new to this group and I have been wondering if anyone had these issues before they came out. My current situation is that I'm in a relationship with a man...as of right now. I have always been attracted to women and even been in relationship with one before when I was younger. The last 3 relationships I have been in were with Men. I was even married to one...he always called me a...