don't give up. You must have so many frustrations..and it would be easier to give up I know that. I wish I could help you more, do you have family around?

What can we do to help you?
Maybe you can send me via email your address and I can send cards.. I feel helpless! kc1881@comcast.net or if I'm online the same time as you hit the chat button and I will chat with you..
Take care...

Don't give up! Are there any other community groups that could assist? Have you tried your local or state MS Society? Hang in there.

Nah. You can have a 'bad day' but don't give up. Life is not futile. For us, it's different. Smaller. I'm SPMS, you're Primary. You have an advanced type of MS; that sux. Big time. In '98, i had a job. By '03, i didn't. My world, my life changed dramatically. Your life has changed over two years. It took me years to redefine and reconstruct my life. This wheelchair and my scooter are now a part of me. MS changes, at times daily.
Get a physiotherapist.
Avoid 'friends' who are not.
Embrace this online community.
Laugh at least once a day.
Cry when you feel it.
MS is complex; it affects all of our
Self. Work on healing all of your
Self.
Find people who care and give a damn.

Hey sweetie! Listen I know how you feel. The way I found out that I had MS was when my entire left side went paralized! I couldn't even move my pinky or anything! Not even my eye brow! I mean nothing! When I had to go to the bathroom, I had to call someone to take me and pull down my pants or whatever. Someone had to bathe me, wash my hair, and all that! Talk about embarrasing! And it gets worse! The doctors had me on steriods, which made me so hungry...well, not hungry, but very snacky!!! I just couldn't seem to stop eating! Then cause I was completely paralized on that side and nothing not even my muscles would move, it caused me to get very constipated! Really bad....I'm talking longer than a week with no bowel movement! My tummy felt like I was pregnant it was so full! So, my hubbie had to give me an imunia (how ever you spell it) That had to be the lowest I've ever been at!

That was the bad news. But the good news is that....it went away! Over a 6 month period, I regained most of the feeling on my left side. I was left with a limp and a bumb left hand. I can't hold anything small in that hand. But I can lift bigger things and I can move it!Then in about another 6 months I regained my regular walk....suddenly! One day I woke up and all of a sudden, my leg worked!

I'm telling you all this so that you won't give up!!! I'm telling you that as suddenly as it came on it can leave!

My best advice for you is this:

1- Take this as a learning experience! Just look around you! There is something to learn in every situation that you are in. Life is a big class room! This is like a test for you. Not for the teacher to learn what you need to work, but for you to learn what you need to work on!

If you see that you don't have much patience, then by all means, work on that! If you see that you have a problem with depression, then by all means, work on that!

Don't let this valley get you down! But use it to get to the next step! There is a story I heard from Joyce Meyer about a mule:
There was an old mule. His master was outside one day and saw the old mule fall into a deep well. The mule just cried out...scared and fearful! The old man didn't know what to do. There was no way to get him out. So, the owner reluctantly decided that the best thing to do was not to let him go thru the pain of starving to death. So, he got a shovel and began to shovel dirt into the well - to bury him...alive. But the mule refused to die that way. Everytime the dirt was shoveled into the well onto his back, HE'D SHAKE IT OFF AND STEP UP! It wasn't long till he got to the top and just stepped out of the well!

The point, don't let this get you down! shake it off and step up!

and #2 - get ready for an "and suddenly"

Another thing that helped me, if you are interested....God! Praying to Him. I talk to Him all the time...He's my Best Friend! I talk to Him about the good things and the bad. If you are interested....give Him a try! :O)

Well, I wasn't intending on this being long. But... it was...lol.
God bless you bri2336! Hang in there! It will get better! Just wait for it! :O)

please don't give up. I understand. I was working, doing charity work and helping at my daughter's school. Then WHAM! Now I am
at home disabled not doing any of those things. If you need a friend to talk to
feel free to email me @ morgaine_lafay71@yahoo.com Or catch me on here. I understand but life is worth living. You just need some one. I know I felt the same way.
Morgaine

Bri? Haven't heard from you..

How are you doing today???

bri everyone has written just what i also would have said...but let me add or request this...ill think of you in my prayers and you please think of me I bet we get good results..god bless you