Okay.. I am totally freaked. I had an appointment with my neuro today - and Tysabri is the only other option for me. I have not made a decision, and have tried to gather as much info as possible - and now this information that came out today - or yesterday - about more cases of PML. Surely my neuro knew about it? Maybe not... I'm at the point where I mentioned NO TREATMENT today to my neuro - even though I know that's not necessarily a good thing - but I am truly terrified. Avonex was hell, many flares, Copaxone caused kidney bleeding/peeing pure blood... I am not able to work, haven't for two years, going broke because hubby's income just doesn't cover everything - pretty soon we'll be living in a cardboard box if SSD doesn't approve me - that's another story. HELP. Are those of you on Tysabri staying on it? Has the new PML cases scared anyone about to go on it???? I'm a basket case. Sorry for the long post.
Posts You May Be Interested In
I miss traveling with my husband. Has anyone found a specific site regarding cruising for widow/widowers or any sightseeing trips. Not interested in being with couples and kids,,,I realize a cruise ship will have a portion size of families and couples, but perhaps they also put together a part of the cruise ship for groups of widows/widowers????
A friend sent this to me..As far as I can see, grief will never truly end.It may become softer overtime, more gentleand some days will feel sharp.But grief will last as long as Love does - ForeverIt's simply the way the absence of your loved onemanifests in your heart. A deep longing accompaniedby the deepest Love some days. The heavy fog mayreturn and the next day, it may recede.Once again, it's...