Multiple Sclerosis (MS) Support Group

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tysabri to a different med?

deleted_user
deleted_user
Has anyone been on Tysabri, and then switched over to a different medication?
If so, may I ask why, and what you switched to?

I started out on Avonex, but then switched to Tysabri. I have been on no med's for the past 6 months. But, I just wondered if anyone has switched from Tysabri to another med.

I don't know what my neuro is going to choose for me, but, I feel like I should be on something!

I am currently at SPMS stage.

Thanks for your imput.
Sheriz
deleted_user
deleted_user
Umm...
What is SPMS stage?

I just had my 1st infusion yesterday for Tysabri. I was on Rebif, had a hard time, then Copaxone...and still continued to have relapses...so I had no choice, in addition I tested positive for the JCV antibody...

Did you notice a positive tords the Tysabri?
MSInterrupted
MSInterrupted
If you check out the Tysabri users group on here there are a few people that have switched off of it.

I know one switched to copax and a chemo, another to rituxin..

Good Luck!

AmyJen2...
Secondary Progressive MS= SPMS There are a few different disease courses of MS, many relapsing remitting (RRMS) will turn into SPMS with time.
deleted_user
deleted_user
Sorry to hear about your spms. My doc told me I have Preimary Progressinve Relapsing, I know that sounds weird but at least I can take meds for it. He's talking about putting me on tysabri. I go to see him again April 6th. We already did the blood work go check on the virus stuff. I'll be watching to learn more about tysabri as we go along.
deleted_user
deleted_user
I was on Tysabri for about 6 months but developed a lymph node complication that they believe was tied to or caused by the Tysabri. I switched over to Copaxone. Copaxone isn't working so now my neuro is trying to get me setup with Gilenya.
deleted_user
deleted_user
I just had my 2nd infusion yesterday. Only to have an allergic reaction less than 1/2 way through. All I remember is a epinephrin jammed into my leg, benedrill shot, some other named shot and a breathing treatment! All rather quickly. Continued to shake uncontrollably and chatter my teeth to then proceed to sleeping the rest of the day. I was told that this has happened to others on their 2nd treatment. Can anyone confirm?
Nervous....
deleted_user
deleted_user
I am coming off of Tysabri after 4 infusions and an exacerbation while on it. I'm about 2 weeks from completing the 60 day washout period. For me, it's been tough sledding with the rebound, even with taking Copaxone and two rounds of Solumedrol. Just extreme weakness, dizziness, and fatigue. Right now I'm in the hospital doing 5 rounds of plasma phareis. Two down and three to go, but I'm starting to feel some energy again. Then it's onto Rituxan.
deleted_user
deleted_user
Wow, I feel very lucky to so far not of had any of these side effects like others have had with Tysabri. I have been on Tysabri for 18 months and am now on my "drug holiday" with it due to testing positive for the JC virus. I have been off of it for about a month and a half now with no relapses. I am going in to get a steroid infusion in a few weeks. I will restart my infusions with Tysabri in a few months. Really the only thing that I have noticed since being on the "drug holiday" is extreme fatigue and even more issues with balance and word recognition.
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