Multiple Sclerosis (MS) Support Group

This community is a place where members can discuss current events and weigh in on what's going on in the world.

966 Members
21,466 Posts
0 Online
Brain & Nervous System
/ Multiple Sclerosis (MS) Support Group

Tysabri - Take it?

deleted_user
deleted_user
My doc recommends Tysabri. I'm looking into insurance coverage and trying to decide if that is the route I want to pursue. Anyone out there tried Tysabri? If so what AEs did you experience? How did you feel after the infusion? Would you recommend it? Any helpful tips? Can you drive home or get out of bed the next day? THANKS IN ADVANCE FOR YOUR HELP!!!
deleted_user
deleted_user
There are alot of people helped by tysabri. Not me, next day after first dose not able to get up by myself.
deleted_user
deleted_user
I was on it for two treatments before it was taken off the shelves. I had no problems with it. My oncologist who gives me my novantrone has asked me about doing it again numerous times but my feelings are to let it be on the market for awhile longer before doing it again. Good luck with your desicion :)
deleted_user
deleted_user
I had all my blood work and MRI done yesterday. I start the IV on Monday. I'm hoping it's going to work for me since Copaxone didn't really help. I'll post on Monday after the treatment. I hear it's supposed to be really good. I know they are doing a reasearch group so I'm not paying for the MRI, treatment and so on. Good luck on your desision and I'll post about it later :)
Posts You May Be Interested In
  • GrassIsGreen

    acknowlodging

    Posted by: GrassIsGreen
    Last Reply: GrassIsGreen
    15
    I have been here before, a long long time ago and now I am back.Forgive me for not just saying what I want to say,even under a triple dose of antidepressants it is still raw and seeping and I am hesitant at revealing it as at least under the bandages around my heart I don,t have to look at how raw and wounded.My child was cleaved from my heart by his own actions. my child of ten,turning eleven...
  • Ilovethekitties

    OT My last day with USPS will be 2-27-15

    Posted by: Ilovethekitties
    Last Reply: GiphyOlivia
    21
    I gave my 2 week notice last Friday 13th. Now to join you fine people in a life of leisure and nothing else to do but to look out for myself....is it just me or does that sound pretty boring? My goal was to live to retire and I guess having to take early retirement because of health reasons wasn't exactly the way I had planned things. I just can't stay in that building that is reeking mildew...