Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
My doc recommends Tysabri. I'm looking into insurance coverage and trying to decide if that is the route I want to pursue. Anyone out there tried Tysabri? If so what AEs did you experience? How did you feel after the infusion? Would you recommend it? Any helpful tips? Can you drive home or get out of bed the next day? THANKS IN ADVANCE FOR YOUR HELP!!!
deleted_user
There are alot of people helped by tysabri. Not me, next day after first dose not able to get up by myself.
deleted_user
I was on it for two treatments before it was taken off the shelves. I had no problems with it. My oncologist who gives me my novantrone has asked me about doing it again numerous times but my feelings are to let it be on the market for awhile longer before doing it again. Good luck with your desicion :)
deleted_user
I had all my blood work and MRI done yesterday. I start the IV on Monday. I'm hoping it's going to work for me since Copaxone didn't really help. I'll post on Monday after the treatment. I hear it's supposed to be really good. I know they are doing a reasearch group so I'm not paying for the MRI, treatment and so on. Good luck on your desision and I'll post about it later :)
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I have had Ttp twice this year I'm 48 my doc said the next time Ttp happens they will take my immune system. Has anyone had this done? Does it work ? What other problems do u get?
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theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??
