Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
My doc recommends Tysabri. I'm looking into insurance coverage and trying to decide if that is the route I want to pursue. Anyone out there tried Tysabri? If so what AEs did you experience? How did you feel after the infusion? Would you recommend it? Any helpful tips? Can you drive home or get out of bed the next day? THANKS IN ADVANCE FOR YOUR HELP!!!
deleted_user
There are alot of people helped by tysabri. Not me, next day after first dose not able to get up by myself.
deleted_user
I was on it for two treatments before it was taken off the shelves. I had no problems with it. My oncologist who gives me my novantrone has asked me about doing it again numerous times but my feelings are to let it be on the market for awhile longer before doing it again. Good luck with your desicion :)
deleted_user
I had all my blood work and MRI done yesterday. I start the IV on Monday. I'm hoping it's going to work for me since Copaxone didn't really help. I'll post on Monday after the treatment. I hear it's supposed to be really good. I know they are doing a reasearch group so I'm not paying for the MRI, treatment and so on. Good luck on your desision and I'll post about it later :)
Join the Conversation
-
A friend sent this to me..As far as I can see, grief will never truly end.It may become softer overtime, more gentleand some days will feel sharp.But grief will last as long as Love does - ForeverIt's simply the way the absence of your loved onemanifests in your heart. A deep longing accompaniedby the deepest Love some days. The heavy fog mayreturn and the next day, it may recede.Once again, it's...
-
I have my maxed amount of epidural shots of my cervical DDD....(and no one cares about my lumbar DDD)..... I've done physical therapy, muscle relaxers, Amitriptyline, Nortryptiline, desipramine.....narcotics... So I decided to go to a spine specialist and they have me on Gabapentin. Its been two weeks and it did nothing for my lumbar ever... but it did seem to help my cervical and arm/hand pain...