i've never tried it.the msaa has info on it.
www.msassociation.org
good luck to you

Tonja, I am in the same boat with you. I have only been dx for 10 months and have been on Rebif and developed 6 new lesions. I too have too many to count! They are putting me on Tysabri - probably around Thanksgiving. I have to wait 4 weeks to let the Rebif get all out of my system before I can start it.

I was diagn. this year also but he said I've had it since Dec. '96. I had other issues then and now they put it back to then. They started me on Tysabri because of the legions. There are a lot. After my three month from the first infusion you get another MRI, I had several legions dissappear. I feel pretty good and know it is working. I have had six infusions now and "0" side effects. The infusions are every 4 weeks at a qualified infusions center. If you have anymore questions look me up. Rusty

Tonja,
I absolutely loved Tysabri. I was able to have 3 infusions before it was pulled off the market and loved not having any of the side effects that I experienced with ALL the other "CRAB" drugs. Unfortunately, when Tysabri became available again, I had an anaphylactic reaction during my second infusion. I was devastated because I never felt better than I did while on the Tysabri. I think you will see great benefits from it and I will keep you in my thoughts! GOOD LUCK!
Michelle

Hi there...I was on Copaxone for about 6 months, and developed 7 new lesions during that 6 months. They switched me to Rebif, and no new lesions. However, because my whole head still felt like I had a shot of novacane for months regardless of the "no new lesions" thing, they decided to try Tysabri. I've had one infusion so far, and the next one is in two days. Hopefully, all will go well. Hopefully Tysabri will work better for you as well.
Hugs!

i'VE HAD 15 DOSES OF TYSABRI no side effects. They believe the drug is able to prevent Tcellsfrom entering your central nervous system who would attack your neurons/myelin. Im feeling about the same but I've had MS for 19yrs.

Good Luck

I've taken my second Tysabri infusion. So far, I'm really impressed. I don't have the side effects that I did with the Novantrone.

I get my infusion and I'm set to go!

Karen

Hi, cant type well, but wanted to let you know that I am starting tysabri as soon as this flare is over (5 days of solumedrol) and that is is working well for a group of friends who I have similar symptoms to (similar to yours) lesions are many, but hope is more! if the tysabri doesn't work- we are going to rituxun (or however you spell it- the chemo-like drug that attacks the b cells) I'll let you know how tysabri goes when I get on it. The TOUCH program is having trouble finding a site to do the infusion- I hope you have more large hospitals in your area (way up maine, here ) :)

thanks for all your input please keep me upedated

I have had 6 infusions of Tysabri. I feel MUCH better than I had before. I initially on Avonex...only to have flu-like symptoms for a year, then Copaxone...lesions increased. I know Tysabri can be scary, but it is worth it. The only side-effect I initially had were headaches. However, I don't get them anymore. They only last lasted a day or two after the infusion. They have been gone since the 4th infusion.
Good Luck with your decision....Chrissy

I just had my 7ht infusion last wed. I do not have any visible symptoms, just the lesions. I am just lucky that they are located in areas of my brain that do not control major functioning...eyesight etc... I do like it WAY more than the Avonex. I have had zero side effects. The only negative is that I have to take a half day off of work every month because they do not have any evening hours yet. My neuro says they are working on increasing the schedule. Good luck to you.

Laura

I dont know why for sure but Tysabri scares me more than any other. I think it is that I read that they find people getting much worst very fast if they stop for any reason. Is this true or did I hear that wrong?

mums

Just an update for something I just found out - I asked the doc about that part of people getting way worse once they go off of it. He explained as this. If Tysabri wasn't working for that patient and they have to go off of it - they were going to get worse anyway.

i will be starting this drug also in jan when my ins changes unless dr decides to start before that but ive tried all the drugs and the only one i tolerated was copaxone but i didnt like the everyday shot so i stopped, yes some symptoms have worstened but now i see a dr that wants to do tsyabri. so he thinks this will help me stay on a therapy of somekind at least. and i know i am stubborn but i just cant deal w/ sticking myself everyday and the indents in my thighs from it. so i hope everything about this drug is true because this is my last straw until something else comes out. i just moved to houston, tx so does anyone know anything about Dr loftus, please responses before i see him again. he just seems to good to be true.