Multiple Sclerosis (MS) Support Group

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deleted_user 10/29/2007

Does anyone have a thyroid disorder and did you get it before MS or after.?
I am now going over my last several months of my MS flare up.Last month I have gained 20 pounds and have a host of symptoms that relate to a thyroid disorder
My Dr.s will not listen to me they keep blaming my MS.
I have not change my diet or exercise which has been limited since dx with MS.
At the base of my neck I feel like I am being choked.My blood work came back and everything is elevated.
I am just frustrated because anything that I get now is MS related. and I know deep down it is not
MY MS is doing alot better.
I am trying to figure out, if my ms flare up created the thyroid problem or vis versa.
Also have alot of risk factors that could have contributed to this. Like the MS,interfeon Beta.recent exposure to iodine vis contrast dye.working in a nuclear power plant. the list goes on. Any input would greatly be appreciated
Really frustrated.
Melinda

deleted_user 10/29/2007

i had to have radioactive iodine on my thyroid done when i was 17.looking back on my symptoms from m.s. it started at 30.unless those random charlie horses i get are from m.s..i never thought they were untill i started to see the posts on here.i can't remember when they started sometime in my 20s

deleted_user 10/29/2007

I've had Graves disease for 14 yrs. I also took radioactive iodine, hey tw5 maybe thats whats wrong with us? lol.. Anyway what you need to do is tell your family doctor to send a referral to a good Endocrinologist that specialises in Thyroid problems.

deleted_user 10/29/2007

I would certainly push the point. I am wondering now if certain problems I am having are also Thyroid. I had my blood test done and it came back negative but I was on line reading and if you had radioactive Iodine the test results could be bogus. I had an MRI with contrast done just a few weeks before the test. Now I don't know if the test results are right or not. I don't think the two problems are related to each other ( the MS and Thyroid) but if you were working in a nuclear power plant then I guess all bets would be off. Keep pushing it. No one else will do it for you.

JHad

kellygrn 10/29/2007

First MS episode in 1960. Same year I started taking thyroid meds.

Still taking it today. Something is not working right because I keep getting larger doses & it is not helping.

deleted_user 10/29/2007

I had (I'm not sure about spelling) Hyshmoto disease. Basically, it's an autoimmune disease. The body attacks the thyroid, in my case destoryed it. This was before my MS dx. I had difficulty swallowing, they could never get it under control. I would swing back and forward between high and low. Finally said, yank the sucker out. And when they got in, it was stuck to my espough and vocal cords. That's why I couldn't swallow. The doctor apologized for not listening to me, when I said swallowing was difficult. It was a few year later that the MS started acting up. But I was told, just because I removed it, didn't mean I wouldn't get another autoimmune problem. I would stay on the general doctor to run test and send to a specialist.

deleted_user 10/29/2007

I have had problems with thyroid since I was 20 yrs old and just recently had the RAI to shrink goitre and thyroid goes between high and low. My neuro and other docs feel thyroid is the cause of most MS flare-ups especially last one. To be honest since the treatment I do feel better. Stay on the doctor's back about thyroid issue maybe it could be a goitre and also have him check your calcium levels for parathyroid problems. I feel that it has aggrevated my MS all along so push for your doctor to follow up. The doctors have gotten alot better about the problem and are starting to listen when it comes to thyroid issues more seriously. Good luck!

deleted_user 10/29/2007

I have hypothyroid and take medication daily which helps regulate it. I did not have this problem before I was diagnosed with MS.

Eloise 10/29/2007

For years my thyroid was 'borderline,' but never enough to treat. Reading about the side effects of Avonex and how it can effect the thyroid, I decided to have it checked (since I was experiencing many of the symptoms of thyroid dysfunction). The test came back perfectly normal. Reading the post about radioactive iodine. I believe that I have had this...but it's been a couple of years. Does it matter when the iodine was used? How long will the iodine affect a thyroid reading? Interesting!

deleted_user 10/30/2007

I was diagnosed with hypothyroidism before I was diagnosed with MS. However, I may have had MS already because it took so long to get a diagnosis. What other symptoms do you have besides weight gain? When you say that your blood work was up, what was up? Hope this helps.

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