Multiple Sclerosis (MS) Support Group

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Brain & Nervous System
/ Multiple Sclerosis (MS) Support Group

The fight

deleted_user
deleted_user
We who have MS are in a constant battle to deal with the onset of whatever tomorrow may bring. Symptoms which are too numerous to count, dealing with injections and whatever issues they add to our daily battle, abandonment those we thought who really loved us leave and cannot or say they cannot deal with the situation. How quickly they forget it is us fighting this disease and if they really loved us they would fight with us.

I dont want to sound pesimistic. There are some really good people out there who are getting great support from their loved ones, their families and friends. I am lucky that I have a special someone who cares for me unconditionally.

As for the fight, dont give up. Dont let this disease define you. Be who you are and do whatever you can. do not let this thing called MS win. Be a fighter and win the fight. If you feel like you cant do it anymore come to me and the people here and we will see you through it...

For those newly diagnosed and just beginning your journey, rely on us who have been there. We will give you the strength to begin your fight...

HOPE
Orsova
Orsova
Thanks so much for these words of wisdom ,strength and hope.
I have been reading the story of Nick Masullo's journey
http://www.nwaonline.net/articles/2007/11/27/our_town/112507masullo.txt
and I found these words from Nick "The present leaves without a trace. You're standing in a different place./You make it to the open door and find that there's a hundred more./As far as the eye can see -- nothing but possibilities."
deleted_user
deleted_user
AMEN
deleted_user
deleted_user
Thank you for your words of HOPE! MS is so unpredictable it makes me so mad, sad, thankful and so many other feelings. I just never know from one minute to the next what to expect. Here's to the fight!!
Christine
feisty
feisty
I agree with your sentiments completely. I sometimes get a little discouraged...mostly when someone I care about is insensitive to the way I am feeling at the moment. But then again, how can I expect people to understand what's going on in my body when I barely do myself sometimes? It's minute to minute most days and I just try to enjoy the ride.

This site is a great place to share those feelings of frustration, my small victories, and especially laughter with all of you who truly understand. Thanks for the post. I love that it's not always about the disease here, it's more about the people. -Jen
SpyderNCSU
SpyderNCSU
Well said, Soul, well said.
feisty
feisty
It also helps if you can show the people around you how to help you fight...
deleted_user
deleted_user
Bless you for making note of this article. "It might be possible to be healed with MS even if I might not be healed from MS" hit on something I really have not admitted to maybe one or two ppl. I feel like ms made me realize I wanted to live! Due to the death of my mother when I was 6 years old I was given to my aunt and uncle to raise. I had a father and older brother sister that chose their own lives over keeping the family together. It was not until my 20's that I realized the devastation of what happened and have had severe depression ever since. Being dx w/ms got me into seeing a doctor and on anti-depressants/counceling. In my life I have spent so much time wishing I was not alive. Untreated depression could have triggered the ms but it also made me want to LIVE!
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