Multiple Sclerosis (MS) Support Group

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steroid side effects!!

deleted_user
deleted_user
Last time I was on steroids in the hospital I was on the IV steroids. after I returned home I woke up with threash in my mouth, yes you heard me right, threash... havent heard of that sence my boy's were baby's. well I just finished another round of steroids for another attack but took a different kind this time. took it from home, starts with a D and had to be made at a compound pharmacy. 200 mg a day for 3 days. well I woke up yesterday with the side of my tongue hurting and my first thought was, I hope it's not the thresh. the pain got worse threw the day so I called neuro to let them know I thought the same thing was happening as last time with threash. he called me in another antibiotic mouth wash like last time. I have taken one dose but now my tongue feels swollen, it hurts so bad to eat, talk, or anything. last time I had white spots all in my mouth and tongue, this time it's just a white coating on my tongue and it looks a little swollen but the pain is worse. Im sure I cant be haveing an allergic reaction 2 days after comeing off the roids. Im sure it's just the thresh again but just wondering if anyone else here has experienced this with the roids.
thanks for reading.
april
deleted_user
deleted_user
I'm allergic to steroids, not like you with the side effects, but breathing difficulties, etc. I have to take ACTHAR, which is a gel that gets injected that stimulates your natural hormone production. I start it tomorrow for this flare-up and then for 2 weeks. I never had any side effects as my body is producing natural steroids. If your insurance covers it and you're ok with injections, you may want to look into that.

I hope you're feeling better soon!
deleted_user
deleted_user
dam, I guess im the only weird one here.... LOL
thanks for your response chrisine.
april.
deleted_user
deleted_user
I never got thrush or anything like that. But the steroids gave me hot flushes and made me so hungry and i couldnt sleep. The first lot i had though did end up giving me a really bad cold sore that bad i could hardly eat. The second lot i was fine no cold sore just the hot flushes and being really hungry.
dnjnm
dnjnm
No April, you are not weird. I get thrush almost every time I get steroids. I eat lots of yogurt, letting it sit in my mouth for a few seconds before swallowing it. My doc at one time in FL gave me Mycelex tablets, but if doc does not, ask your pharmacist, and they have something else that works. I found that the yogurt worked just as fast.
Best of Luck! DD
deleted_user
deleted_user
I just had IV steroids and I am on an antibiotic for sinus infection and UTI. I thought those were the culprit because I have the coating on tongue and it feels like I ate something too hot and burned my tongue plus bumps and it hurt to eat. It must have been the steroids. I will remember this for the next time and have some yogurt on hand. It used to be that all it did was give me mood swings, and a ton of energy. I would come home and head straight for frig to clean it or to clean bathroom. The first time I had them I came home and began redecorating the kitchen complete with wallpaper. Now it is a joke my daughter hides any paint or wallpaper I might have lying around and she cleans out frig before I would come home.
deleted_user
deleted_user
When my dr. put me on iv steriods, I felt woozier than usual and really crappy. I called to get DishNetwork satellite and a DirecTv person came out instead! I guess I dialed the wrong number. I didn't care, as long as there was tv to watch. My husband was kind of confused though. I leave stuff like that up to him now just so it's not my fault when something goes wrong! ;)
deleted_user
deleted_user
That sounds awful, April. I'm sorry this happened to you. They are very powerful drugs (that's why they work to stop the serious symptoms) so NOTHING is impossible.
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