Multiple Sclerosis (MS) Support Group

This community is a place where members can discuss current events and weigh in on what's going on in the world.

977 Members
21,468 Posts
0 Online
Brain & Nervous System
/ Multiple Sclerosis (MS) Support Group

SPMS?

deleted_user
deleted_user
How do you know when you are SPMS?

I've only been DX with RRMS since June 07, now Oct 07 I'm DXed with possible SPMS. I have never recovered from my last relapse, (which I didn't even know was a relapse) the beginning of this year.

So here I am...progressing with something I didn't even know I had. Oh sure...it does explain all the weird stuff going on with my body for over 20 years. So I have never been on any meds until now. I'm taking Rebif, but is it too late?

I've read the posts...there are meds I would like to try. I know LDN has been kicked around. It seems even those that have tried LDN had tried one or some of the CRAB drugs. Did they get a benefit from them? Maybe it did slow the progression? How do you know where you would be today if you hadn't had them at all?

I would like to hear from the SPMS especially....What was your turning point?

Thanks everyone! I appreciate your comments!
deleted_user
deleted_user
I have SPMS, I have had no clinical excerbations in about 1 and a half, but been having gradual worsening of my symptoms and in general not getting better....my last relapse was loss of legs for over 2 weeks that was a long time ago and I got better(but not to wear I got walk with out assistance)
Now, I am in a wheel chair when I am in puublic and I just find alot more symptoms and challenges then what I used to have...does that make sense.
For me that is what made my dx with SPMS

Hugz
Morgaine
deleted_user
deleted_user
as for the CRAB drugs I have yet to find one that doesn't make me so dang sick or and allergic reaction....I can't take LDN becuz I am on opiate pain therapy and if I quit that I wouldn't be able to move, becuz of the dang pain. I do take baclofen for muscle spasms and spasticity and it works well.
hugz
deleted_user
deleted_user
Thanks Morgaine
deleted_user
deleted_user
you are very welcome anything to help just let me know
Hugz
Morgaine
deleted_user
deleted_user
Thanks Suny
Posts You May Be Interested In
  • GrassIsGreen

    acknowlodging

    Posted by: GrassIsGreen
    Last Reply: GrassIsGreen
    15
    I have been here before, a long long time ago and now I am back.Forgive me for not just saying what I want to say,even under a triple dose of antidepressants it is still raw and seeping and I am hesitant at revealing it as at least under the bandages around my heart I don,t have to look at how raw and wounded.My child was cleaved from my heart by his own actions. my child of ten,turning eleven...
  • irishwriter

    come unwind in the bp lounge

    Posted by: irishwriter
    Last Reply: irishwriter
    7906
    theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??