
Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.

deleted_user
How do you know when you are SPMS?
I've only been DX with RRMS since June 07, now Oct 07 I'm DXed with possible SPMS. I have never recovered from my last relapse, (which I didn't even know was a relapse) the beginning of this year.
So here I am...progressing with something I didn't even know I had. Oh sure...it does explain all the weird stuff going on with my body for over 20 years. So I have never been on any meds until now. I'm taking Rebif, but is it too late?
I've read the posts...there are meds I would like to try. I know LDN has been kicked around. It seems even those that have tried LDN had tried one or some of the CRAB drugs. Did they get a benefit from them? Maybe it did slow the progression? How do you know where you would be today if you hadn't had them at all?
I would like to hear from the SPMS especially....What was your turning point?
Thanks everyone! I appreciate your comments!
I've only been DX with RRMS since June 07, now Oct 07 I'm DXed with possible SPMS. I have never recovered from my last relapse, (which I didn't even know was a relapse) the beginning of this year.
So here I am...progressing with something I didn't even know I had. Oh sure...it does explain all the weird stuff going on with my body for over 20 years. So I have never been on any meds until now. I'm taking Rebif, but is it too late?
I've read the posts...there are meds I would like to try. I know LDN has been kicked around. It seems even those that have tried LDN had tried one or some of the CRAB drugs. Did they get a benefit from them? Maybe it did slow the progression? How do you know where you would be today if you hadn't had them at all?
I would like to hear from the SPMS especially....What was your turning point?
Thanks everyone! I appreciate your comments!
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