Multiple Sclerosis (MS) Support Group

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Brain & Nervous System
/ Multiple Sclerosis (MS) Support Group

Spinal Tap

deleted_user
deleted_user
Ok it turns out that my spinal tap was negative for bands but positive for Myelin proteins. Has this happened to anyone else? My neuro said it is early signs that bands will develop?? Waiting on maintenance drugs until I have another event though.
deleted_user
deleted_user
No, I'm sorry never had myelin proteins. With my spinal tap I had 5 bands and with my MRI it showed lesions on brain and spine but they still wants to wait on my maintenance drugs. Just keep check on things and pay attention to your body because only you knows you. Take care of yourself.
Sheila
deleted_user
deleted_user
I concur with Conqueror - 'pay attention to your body because only you know you'. You are your best source of how you're doing. Do research to learn what you are being told.
deleted_user
deleted_user
I had myelin proteins, no bands, no spinal lesions, and I am on maintenance drugs. No bad side effects - so I thought I stick with it for now.
deleted_user
deleted_user
I really think it is just a mix of what they see for all of us. I had proteins, a major lesion in my spinal cord (cervical spine MRI) and one "questionable" lesion on the brain MRI. And I am on a wait and see routine with repeat testing in December. I just don't know what we are waiting to see?? I have symptoms and most of my tests have been positive so why not drugs?
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