how do I tell if avonex is going to help my special needs daughter. We are about to start. My daughter has never been able to complain of a simple headache. A moderate intellectual disability and dyspraxia has kept her around 5-7 yrs. she says no to all docs and shear panic now when someone new is on the scene.
i wouldn't allow tabs, although an easy option, the pml scared me. She would never be able to tell me any symtoms arising. The symtoms cover everything her dyspraxia is. Blindness on top of this just was not an option. Coeliac and hernia was also thrown at me during diognoses.
try to stay strong if you can tell someone your pain,sick feelings, numbness,etc etc. as a mum, I will never know if avonex is good or bad or catch a relapse at an early stage. I will be sitting beside her just watching tv while she maybe suffering. A life of watching her decline slowly is unbearable. All I can do is diet, motomed, watch her face expressions, physio and the look that she is about to deck me at her most frustrated times.
im thinking stem cell in oz and starting to save, though I believe it's like cancer treatment. Her little claim to fame is her hair,that is down to her waste. That may go and it's the little things silly maybe to some but to one who has no idea is a reality for us. She can't even throw up very well as her focus due to dyspraxia is shot. Still going to start a saving. Hope it's a little more fine tuned in a few years.
has anyone had success with stem cell,side effects, how long treatment, what type of Ms is suitable for it? How long treatments last?
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This time I used an Old El Paso chicken taco spice packet. My husband is not too crazy about chicken but he just loved this!!