I told myself I didn't have it for 12 years. it is normal to have denial i guess. it is a hard thing to comprehend. But there are other things it could be. kim

I wanted to put this post up myself. My difference is I have this sixth sense that I do have MS. I've always thought that I would turn up positive for it. The doctor suggested that we do another MRI last week since I have SO MANY of the symptoms, and the MRI came back negative, but still, I know that there are people who have MS, whose MRI's were neg. also. I'm so confused. I hate to wait 4 yrs to be dx'd, but I don't want a spinal tap either. Guess I wait.

i was first dx with fibro. then when my legs went i thought it was MS doc told me no one gets MS anymore and it's all in my head. well i had an MRI done and my leasions are only on my spine. and nero told me 50% of the ppl dx with fibro have MS

I have spent 2.5 years waiting for my symptoms to be alarming to the dr. I lost vision in my right eye temporarily and bad cognitive issues. The neuro is doing what she can to diagnose me. BUT in the mean time it is VERY hard not to look on line why I need this test or that test. I wish any doctor would say "you have this" then I can get treated and emotionally and mentally MOVE ON. I feel stuck in this grey area that I can't get out of. Having symptoms and there are no answers YET... It is established that I have something auto immune but they dont know WHAT. Self diagnoses trying not to...

IT'S NOT SILLY I QUESTION MY MS DX ALL THE TIME.SINCE I REALLY ONLY HAVE PROBLEMS WALKING WITH MY RIGHT LEG AND KNEE IT FEELS LIKE ARTHRITIS.THE PAIN I GET IS BURSTIS INMY LEFT SHOULDER.I DON'T HAVE THE TYPICAL MS SYMPTONS SUCH AS FATIGUE,THE SUN/HEAT[THAT MAKES ME FEEL BETTER THE OPPOSITE OF MOST PEOPLE WITH MS],PROBLEMS WITH VERTIGO AND EYE PROBLEMS I HAVE NONE.ALTHOGH I HAVE PROBLEMS WITH BALANCE AND I CAN BE SPASTIC I STILL QUESTION THE MS I HAD MY FIRST MRI LAST YEAR THATS WHEN I WAS DX NEVER HAD A SPINAL BUT,MY NEURO SWEARS IT'S MS.I HAVE BEEN TAKING LDN SINCE APRIL I JUST GOT MY SECOND MRI OCT I HAVE NO NEW LESIONS AND 2 HAVE DISSAPEARED.THEREFORE I FEEL THE LDN HAS WORKED.BOTTOM LINE IS I QUESTION THE MS DX ALL THE TIME AND OTHER TIMES I FEEL I HAVE MS DUE TO THE BALANCE AND SPASTIC PROBLEMS.

I sometimes wonder myself, I have been tested and it came back negative. But still experiencing the symptoms after a year just seems to coincidental. I do have fibro and CFS. Fibro and MS have nearly the exact symptoms, so I often wonder if they are not the same. When I first read the symptoms of MS it was picking up a book and reading my life story. I guess you would say that I am one of those that would be self diagnosing. It's so hard to go so long without difinitive answers. We need something to ease our minds.