Multiple Sclerosis (MS) Support Group

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Brain & Nervous System
/ Multiple Sclerosis (MS) Support Group

Rubberband Squeeze Around My Waist

deleted_user
deleted_user
Feels like a rubberband is SQUEEZING me around my waist. Been there for days. At first, it was just the sensation, you know? But for the past two days, its like squeezing harder and harder...I feel like I have a girdle on. its 24/7. anyone relate? I'm going to the doc on dec 7th...should I try to "up" the appointment sooner? Thanks and hugs Ellen
kellygrn
kellygrn
It is called "MS Hug". Some call it banding. Just part of MS.
deleted_user
deleted_user
i had that also. i get it around my waist and my knees.
had to do iv steriods to take it away
feisty
feisty
I've had it also. Sometimes it stays in ones place for a few days and then goes away. Other times it has spread over my whole torso making it diffiicult to get into a sitting position after I've been laying down. It looks pretty funny. If it bothers you, I would try to change my appt. with your neuro., better safe than sorry. -Jen
deleted_user
deleted_user
I can relate...I have whatever it is between my shoulder blades. The best way I can describe it is it feels like a rubberband attached to both shoulder blades and something is twisting it tighter and tighter.
deleted_user
deleted_user
yup I get that and down around my hips also :(
hugs
Morgaine
Orsova
Orsova
I've got banding round my knees and lower legs atm. No tap dancing for me today!
deleted_user
deleted_user
Yes, I too get the hugs in varies in the spots that it hits. You are not alone, just part of this MS. Hugs
deleted_user
deleted_user
Yes, I get that too. Mine is around my head. Makes me feel like I am wearing one of those headbands from the 80's!! ;-)
TexasMS
TexasMS
I get that same thing but it usually happens at the same time I have spasticity in my left leg and usually when I am lying down. If is kind of freaky and it makes it a little harder to breath although it in lower on my body, around the waist and lower stomach.
deleted_user
deleted_user
My MS Superbra. I get it around my chest...... Sometimes it takes my breath away. It is normal and very annoying... Call the Doctor, no reson to wait if you can get in soooner!
deb727
deb727
I have had this before, and like Tmanz, it felt like a very tight bra. Extremely uncomfortable, so much so that I couldn't wear a REAL bra.
deleted_user
deleted_user
WHEN I FIRST GOT MS HUG,I DIDN'T KNOW WHAT THE HECK IT WAS.I BOUGHT A BIGGER BRA.(LIKE YOU NEEDED TO KNOW THAT,LOL)WELL THAT DIDN'T WORK.
I'VE HAD IT FOR QUITE A FEW
YEAR'S FROM BELOW MY NECK TO
MY WAIST.IT'S ALMOST EVERYDAY.I CAN'T STAND TIGHT
CLOTHES.I FIND IF YOU DON'T PUT PRESSURE ON IT OR GET TO
BLOATED (DEPENDING WHERE IT IS)
THAT HELP'S SOME.I ALSO FIND
RELIEF FROM VALIUM TO LOOSEN
THE TIGHTNESS.SO LOOK'S LIKE
WE HAVE LOT'S OF COMPANY.
LOT'S OF LUCK TO YOU!
deleted_user
deleted_user
I have had the mS hug for years. It does go away sometimes only to return with a vengence. Now, I have experienced it moving uo the left side of my neck and across my head over left eye. This has never happpened before. So, since my neuro has moved away, I am searching for new neiro.
deleted_user
deleted_user
Oh yes that wonderful tight bra..I get this tightness under my chest, above my waist.It comes and goes, very unconfie!
deleted_user
deleted_user
it's not funny,but i'm laughing about calling the dr.
until i found out it was normal with ms and called the ms hug,when i mentioned it to several dr.'s,they looked at me like i had two head's.i think some of them sound go on a site like this and see how many different ways ms can really make us feel.i'd like to put a tight bra on some of them.lol
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