have you recently been on steroids??? because i know they don't like to have you on them too much. but he should be willing to give you something for your symptoms. i'm so sorry your going through such a rough time. i've been right where you are and it's terrible.
maybe your husband could call your neuros office and tell them how bad your doing. i found that when dr.s wouldn't listen to me they would him.i think at times drs thought i was exagerating.

I'm sorry you're having such a hard time April. I wish I had some good advice for you, but I'm new to all this myself. Just wanted to reply and let you know we're thinking of you.

last time on roids was back in aug. with me last attack. I doubles me provigil and it did nothing. not sure whats going on. thank you for your replys twf and dlee....
hugs

April, sorry you are feeling so bad! ((((HUGZ))))) Your doc may want to see you to actually check on strength, visuals, balance, etc., the clinical part of the MS. You may end up with steroids after all, but he may want to examine you first! I have had steroids twice within a month, when the first round did nothing for me. I am just surprised they want you to wait til Monday! I know it is a holiday, but they could try to work you in sooner. But that is my opinion! If you feel you can not wait, go to the ER. There is an organization that will pay for your MRI, someone help me out here, cause exactly where/who slips my mind. Anyway, try to relax and enjoy your Thanksgiving! Maybe someone else can do the cooking! Or go out! Keep us posted! DD

I DON'T KNOW IF THIS WIL HELP U BUT, WHEN THE SEASONS CHANGE FROM SUMMER 2 FALL I GOT REALLY SICK. HAD ALOT OF MS SYMPTOMS DID NOT NEED THE ROIDS THEN JUST NEED 2 RIDE IT OUT WHICH I DID AND DID GET BETTER. I AM SO SORRY U R FEELING OS BAD IT REALLY HURTS ME WHEN MY FRIENDS HURT. GOING 2 POST A VIDEO HOPFULLY IT WILL PUT A SMILE ON UR FACE.

Hi April - Sounds like you need a better communication going with your neuro as I don't think you should feel so alone in this - there should be better imput on the other end so far as I can tell.

I've learned to say whatever the hell comes to mind - it's my life, my body and he doesn't know what I'm going through unless I make sure he does. Does that make sense? Hang in there. Communicate and if you're not happy with this one, always remember a second opinion is a healthy idea.
Lorrie

Hi April, if it is really bad why don't you just go to the emerg dept in your hospital. If you have to wait to see your neuro in the office, I would go to the hospital. Good luck and HUGS Margaret.

I'm so sorry you are hurting. I know how frustrating that is to hurt and know that there is nothing you can do but wait it out. Just know that we are here for you. I am praying for you right now...Try getting your mind on something positive if you can. I know it's hard. One thing I do, that really helps me is praising God. To some, this may sound just too weird, but it helps in that you are taking your mind off of the pain, and putting it on something else. When I am praising God, it takes my mind off of the problem and puts it on The Problem Solver.
When you first start out, you may not "feel" like it, but the more you thank God for His goodness, the more you think about the good things that He has done for you. You begin to smile, you just can't help it! Then the more you think about His goodness, the happier you get! "The joy of the Lord is your strength!!!!!!" If you need strength, praise God, "God inhabits the praise of His people!" "In His presence, there is fulness of joy!"
"A merry heart doth good like a medicine!" all these qoutes are from the Bible. This is my little secret to feeling better. I sure hope this helps. God bless you.
Love Darla

HI, I REALLY FEEL FOR YOU. I HAD EXACTLY THE SAME SYMPTOMS THAT YOU HAD. I WAS IN BED FOR A FEW DAYS AND IN SO MUTCH PAIN. MY LEGS AND FEET WERE BURNIG. EVERY TIME I WOULD WALK OR STAND THE PAIN WAS HORRIBLE. THE DOCK GAVE IN STEROID INFUSIONS FOR THREE DAYS AND THEN STEROID PILLS FOR THE NEXT 10 DAYS. I'M CURRENTLY OUT FOR 6 WEEKS ON DISABILITY, AND I'M FEELING BETTER. I STILL HAVE LIMITED MOBILITY AND ONLY WALK VERY LITTLE. LIFE SUCKS.... YOU ARE NOT ALONE...

I feel your pain, my last job of 20 hrs a week left me in bed and now unable to work. I never got steroids. Its horrible, I think the Doctors just dont get it. we seem to look fine.
I hope someone will change the system for dx!I smoked and that helped alot.

I really hope you start feeling better soon. That stinks that they want to wait until Monday to see you. I agree with some of the people...it it's bad, go to the emergency room. Maybe then...they'll start to take you more seriously. Something similar happened to me. I ended up getting a new neuro who was there for me more. Hugs to you! I hope you feel better.

We are all here for ya April. Not good timing for this, but MS has it's own calendar and agenda. Just go to the office and wait........what I do. Keep us informed.....you matter muchly. Steve

What can I say....
you guys are great and always have been.
this is what I love about this DS, It feels good to give support and then when it's your turn with the MSter It feels good to recieve the support which you guys never fail to give.
thank you very much and Im hanging tough till I come out on the other side of this thing..
Happy Thanksgiving all..
hugs
april

P.S. NTK has a great video journal posted, sure made me laugh. check it out..