Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
Most of my symptoms are considered sensory (burning/numbness/tingling, etc). However I know that I have lost muscle strength, and weird little things. Like I can't flip someone off with my left hand, my middle finger won't go straight, although my right middle finger just works fine. It's odd things like this. I pass my neurological test with flying colors, however I tell my neuro, it's not the same. I used to be able to walk on my heels no problem, now I can't. I never felt like I would fall over during tippy-toing (and scared i might not be able to that day) but now I avoid it.
I'm a little concerned because, yes, I am able to push this, shrug that - but it's not as strong as I used to be. Maybe it's because I've it my mid thirties, or maybe it's MS. Either way I'm told it's all sensory. How do I explain my frustration of not being as strong as I was, or stable, sturdy? How do i explain I used to bench press 100 lbs now it's more like 40??? Yes, i can still lift if I need to, but now it's hard and some days I really can't do it.
Should I be concerned? Or is this normal?
I'm a little concerned because, yes, I am able to push this, shrug that - but it's not as strong as I used to be. Maybe it's because I've it my mid thirties, or maybe it's MS. Either way I'm told it's all sensory. How do I explain my frustration of not being as strong as I was, or stable, sturdy? How do i explain I used to bench press 100 lbs now it's more like 40??? Yes, i can still lift if I need to, but now it's hard and some days I really can't do it.
Should I be concerned? Or is this normal?
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I gave my 2 week notice last Friday 13th. Now to join you fine people in a life of leisure and nothing else to do but to look out for myself....is it just me or does that sound pretty boring? My goal was to live to retire and I guess having to take early retirement because of health reasons wasn't exactly the way I had planned things. I just can't stay in that building that is reeking mildew...
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Has anyone tried these supplements? Do they give MGers more quality of life by improving memory and overall well being?Thanks!Barbel
I have had few (maybe 3 in 10yrs) full out identifible exacerbations. (optic neuritis once). But yet i am a spastic hemi,unsteady, use a cane, one sided weakness etc etc.
i recently was a new neuro who described my history as steps. i went down a step (in abilities) and then leveled off for a while, then down another step and leveled off, etc. I's not textbook RR MS, nor textbook progressive MS. More a combination.
Treatment?? Try to stay healthy, eat rest exercise.Be agressive when you feel the sniffles.Stay on one of the drugs- maybe ask to change Rx, maybe ask to do a interferon neutralizing antibody blood test to make sure ur body is able to use the med's. and stay positive. i know my note is long (and depressing when i read it!) but i really consider myself a positive person, and work to stay that way everyday. I don't watch the news because it's so upsetting and depressing... i don't regularly go to MSchats or message boards (even this one!)because i find them so upsetting and negative. The other positive point i keep in mind - NEW MED'S ARE JUST AROUND THE CORNER!
good luck!
I have no feeling from the chest down & there is nothing that can be done. Someone has to check my skin for breaks & tears every day.