Multiple Sclerosis (MS) Support Group

This community is a place where members can discuss current events and weigh in on what's going on in the world.

896 Members
21,436 Posts
0 Online
Brain & Nervous System
/ Multiple Sclerosis (MS) Support Group

pain relief

deleted_user
deleted_user
I am experiencing worsening neuropathic pain in my right arm and leg. I have tried Topomax, which seemed to work well, but the side effect was losing too much of my already thin hair, so I stopped. I also tried Neurontin, which made me gain weight and didn't seem to help anyway. Now I take Cymbalta, which helps with my emotional issues but doesn't help with pain. The pain is not severe, but aggravating and persistent. Any suggestions will be appreciated.
ChrissyH
ChrissyH
Hi there!
I also experience neuropathic pain through my back and down my left arm and leg. My neurologist knows I am fussy when it comes to my weight, so he prescribed Amitriptylin. It will take 4-6 weeks until I feel the full effect. But so far the discomfort seems to be minimized. The only side effects I have had so far is that I sleep so soundly now that it is hard to get up for work and some headaches. I hope this helps.
Chrissy
deleted_user
deleted_user
Have you tried making ibuprofin an everyday med. Sometimes, since it's an anti-inflammitory, it can help. They nerves swell, causing pain. The ibuprofin controls that. Have you told you neuro that it's still nagging you? And you actually know for a fact that the Neurotin made you gain weight? That seems unlikely, but perhaps it's possible. I didn't see that as a side effect. Well, good luck to you.
ChrissyH
ChrissyH
If you don't want to gain weight, don't take amitriptylin. I was told by my neurologist's PA that I wouldn't gain weight. I got on the scale today when my jeans were snug--I gained 4 pounds in 8 days!!!! I wo
deleted_user
deleted_user
What dosage of Cymbalta are you on? When I started Cmymbalta my dosage was too low (30mg) didnt even touch the neuropathic pain in my legs. I currently take 90mg and notice a HUGE difference in decreased leg pain. Before taking Cmybalta nightly my leg pain would keep me up. I was just to distracted by the pain to fall asleep. I know alot about this medication so if you have any questions about it, or the dosing of it, just let me know! Feel Better! Kerri
deleted_user
deleted_user
hey folks-up here in Canada, we have a few different options that are used quite a bit by my friends with MS. You could try gabapentin, pre-gabalin (which I think is called Lyrica), Effexor, or you could try one of the cannabinoid based drugs like either Cesamet or Sativex. There are about 10 in total that are available, but like anything else, what works for one might not work for another!
deleted_user
deleted_user
I take Kadian 15 mgl twice daily.

Synthetic morphine. It's not like wow, morphine dude..I don't even know I am on it. It is time released capsules.....does NOT work for IMMEDIATE pain relief though.....just stays in systems, and keeps most of the worst pain away. Beenon it now months.

Helps a great deal. I am looking for a instant relief pain med though for kadian dosen't do that. I use tylenol arthritis for immeidiate relief
Posts You May Be Interested In
  • carrie415

    Widow/Widowers Traveling/Cruise Trips??

    Posted by: carrie415
    Last Reply: Myfavorite
    11
    I miss traveling with my husband. Has anyone found a specific site regarding cruising for widow/widowers or any sightseeing trips. Not interested in being with couples and kids,,,I realize a cruise ship will have a portion size of families and couples, but perhaps they also put together a part of the cruise ship for groups of widows/widowers????
  • joannklingaman

    Grief

    Posted by: joannklingaman
    Last Reply: lovesloons
    11
    A friend sent this to me..As far as I can see, grief will never truly end.It may become softer overtime, more gentleand some days will feel sharp.But grief will last as long as Love does - ForeverIt's simply the way the absence of your loved onemanifests in your heart. A deep longing accompaniedby the deepest Love some days. The heavy fog mayreturn and the next day, it may recede.Once again, it's...