Multiple Sclerosis (MS) Support Group

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Brain & Nervous System
/ Multiple Sclerosis (MS) Support Group

Optic Neuritis

deleted_user
deleted_user
I woke up in June with cloudy vision in my left eye.. This of coarse led me to doctors, MRIs and the positive MS dx in july.
Well I'm still struggling with this eye problem and my right eye has even clouded over some but is not blurry like my left eye, Thank God.
I've been to 2 eye doctors, they say there isn't much I can do. I know some folks have had it worse in which case, they did the steroid treatment, buy my case was so minor, they advised against it... :( So now I"m living this this thing.. and it's annoying.. Sometimes I think it's better, but other times I think it's worse. like right now... *sigh.. What do I do? Get a 3rd opinion? Wait it out? Is this going to go away? My doctor scared me the other day by saying "The damage is done.. just wait it out... Could go away.." And last time I saw him he said the nerve was no longer swollen.. This time he said yes it is swollen... Guh.. So confused. When I talk to doctors I just draw a blank.

Also I have another question which is a horrible one.
Are there any smokers out there with MS? Sad enough, I still smoke some.. You'd think I'd grow up and want to quit. :(
deleted_user
deleted_user
i had optic neritus 12 yrs. ago it cleared up and i have never had another episode. i think everyone with MS is different i think we all have battled eye issues here and there. yes i am a smoker i do plan to quit. but when i am ready to.(which will be soon cigsrettes are going up a dollar here in WI.hell i said i'd qiut when they hit 3 bucks) good luck lemme know how your eyes are doing.
deleted_user
deleted_user
Your doctor is an idiot. Go see a neurologist. Or a new neurologist. You probably have optic neuritis and let somebody who knows what the hell they're talking about diagnose it and see if he can treat it. Where do all these doctors come from!!!
deleted_user
deleted_user
This could be your ms thing...for me it is my vision and my legs...for others it is something else. Optic neuritis was how I was diagnosed also...nine years ago it got better...right now I am completely blind in right eye and the left eye (obviously feeling left out) is starting to catch up! My dr. (in all of his infinite wisdom) also just says to give it time...its been 7 mnths! Oh well...he's an ass!
kisses and hugs, em
deleted_user
deleted_user
YEP
I WOKE UP IN JUNE ONE DAY CROSSEYED, DR GAVE ME STEROIDS AND IT WENT AWAY, BUT MY VISION IS BAD AND BLURRY, I HAD MY EYES CHECKED AND THERE IS SOME DAMAGE, BUT THE EYE DR TOLD ME TO BUY A PR OF THE CHEAP READING GLASSES AND WEAR THEM WHEN I HAVE BLURRY VISION, HE SAID MY EYES MAY CHANGE OVER THE NEXT YR DUE TO MS, BUT THEY HAVE ALREADY GOT WORSE THEN 2006.
HOPE THIS HELPS YA
JAV
deleted_user
deleted_user
I agree...your doctor IS an idiot. When my eye started getting fuzzy, I made an appt. It ended up being a very long appt, in which I had 4 different doctors in to check my eye. He immediately set up an MRI for me the next day. The next day, I had my MRI, and wasn't expecting to hear back so quickly, but heard back from my eye doc. at 6:30 at night. He told me what the MRI showed him, and got me set up with a neurologist right away. He's an awesome doctor who still checks me out every 6 months just to make sure. You need a better doctor. Trust me..they're out there.
deleted_user
deleted_user
This was my first big problem for MS. Luckly when it happened, I was near our eye Dr. when I got there they took me straight in and had me there for over 3 hours checking my eyes blood pressure and other thing. They sent me the next day to see a Optical neurologist. He was wonderful. He new from the first intial exam and his questions he asked. He ordered everything immediatly. Get more opinions. Don't put this off.
deleted_user
deleted_user
I have had Optic Neuritis twice. Unless they catch it at the beginning there is no point going on the steroid treatment. It won't help it any. I had blurry vision for 3 months before it cleared up. Ahain, the only thing you can do is wait. The second time I had it, it didn't completley clear up. I still have slightly blurred vision in my left eye. I am used to it now.
I went though many many series of tests before the doctors decided it was ON.. I hate doctors. I only go once a year. If I get a flare up. I ride it out. They don't know shit.
deleted_user
deleted_user
I had it right before I was diagnosed 6 years ago. My peripheral vision on the left was also affected from it. Now and then I get what I call an eye headache in my left eye. I started to take an antioxident and that has helped and I don't get them as much as I used to. Besides western medicine, look at alternative medicine too...Some doctors just piss me off. They think everything can be fixed with a pill.
deleted_user
deleted_user
My blurry vision (like vaseline on a contact) was my first symptom. I ended up losing all vision in my right eye and then some in my left. 2 rounds of steroids later and I have vision back in my left eye and partially back in my right. I have also been told my vision MIGHT come back all the way or MIGHT NOT. I have also been told that, because it's my optic nerve, it doesn't change my glasses or contact prescription. (That might sound obvious to some but it wasn't to me.) The blurriness definitely gets worse when I'm tired.
I guess I have no answers for you but I know how you feel.
deleted_user
deleted_user
I had my first bout of ON in 1987 and my eye doctor said "the first time you have it you don't have to worry, but you never want it again". He sent me to an eye specialist but by then it was gone (5 days later) so they never did anything. Well in 2000 it came back, but I had other "symptoms"before that, nobody every picked them up. The the dr who checked me the 2nd time KNEW immediately and called my PP and so thats how my dx began. Good luck, but get a new doctor...yours sounds like an idiot. I had damage in my eye, but for the most part I have no problems (except when I have an exacerbation) then it seems to affect my eyes too. Good luck
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