I'm sorry, I don't think I was clear...I am looking for advice on how to manage the steroid symptoms from people who've been there before...pardon my previous ramble

WHEN MY EYES GO I GET 5 DAYS OF SOLUMEDROL OVER 1 HOUR EACH DAY, ONE THING HAVE FOUND IS DO NOT LET THEM PIGGY BACK THE IV BECAUSE YOU DONT WANT THE EXTRA FLUID, NUMBER 2 KEEP YOUR LEGS UP AS MUCH AS POSSIBLE
NUMBER 3 USE THE PC TO RAGEE OUT ON , WE ARE HERE FOR YOU OTHER THEN THAT HAVE TO TELL YOU I AM ON ONE IV A MONTH NOW TO PREVENT EYES FROM GOING WACKY, SO FAR IS WORKING AND IT BEATS 5 DAYS IN A ROW , LESS SIDE EFFECTS
GOOD LUCK,GREAT BIG OLE BEAR HUGGZZZZZZZZZZZZZ

Although I blimp out on steroids, they do make me feel like wonderwoman, esp. solumendrol... It's been a couple years for me since I've done them, but they always give me loads of energy so the puppups get extra walks! xo Cj (Cindyjo)

I do better with oral Decadrone. The first time I had iv solumedrol it did nothing for me and I had to follow up with the oral. So now when I have a flair up it's straight to the oral. The taper off was hard the first time, crying all the time, but after that it's been fine. In fact, I too feel GREAT while on the 'roids. Nothing on your body hurts! I can see why atheletes get hooked on the stuff! Good luck!

The BIGGIE with Solumedrol (in my case)AND other "roids" is monitoring your blood glucose levels. Since, I'm diabetic I just happened to ask about how taking it might effect my condition, the info that no one thinks to volunteer is steroids can play havoc with blood sugar levels....even if you aren't diabetic! My suggestion is to have your blood glucose monitored while you take steroids and watch your diet as necessary.

Be sure to drink plenty of water the day they put the IV in, and any day they are suppose to change it! Makes it easier to do! Best Wishes! I know it stinks!

don't be afraid, It will be the best thing to happen to you I promise... You WILL feel so much better, nothing to fear, except feeling GREAT...

I'm sorry, getting the IV and such high doses does suck, but it can make you feel TONS better. My most adverse side effect is a massive headache which I take a Ibuprofin for and stay plenty hydrated. Good Luck!!!

Ask to be tapered off them. I had three days of steroid infusion (hour per day) and then nothing...no tapering. I experienced a severe steroid 'crash' which was a horrible experience. Tapering will help your body adjust gradually so that you won't crash. I just learned why it is so important to taper. As soon as we take steroids our bodies quit making them. As we taper off, our bodies have to do some 'catch up'. There is some lag time between the steroid dosage and what our body produces. This is why tapering is needed. Makes sense. Why my 1st neuro. had me go through that I'll never know. I agree, though, that they do give you energy (for a couple of days for me) and that they can wreak havoc with blood sugar. Interestingly enough for me, though, my blood sugar went down instead of up. Then again, I usually am the odd duck!

Good luck with the infusion--I hope it works well for you.

When I was first diagnosed I was so bad I would get the SoluMedrol for 3 days every 3 months, well talk about putting weight on! But that was only for a year,now I only have them with a bad flareup and makes me feel so much better, but I agree, have them give you the orals to taper you off from the IV. Good luck

Dr. Bob Lawrence has a steroid protocol for those on LDN who are told steroids would help. It's a non-steroid protocol.

Brenda has it on her forum. http://ldn.proboards3.com/index.cgi maybe check it out QUICK? Not sure how quickly it works, never considered it or steroids before.

hope you feel better soon