Multiple Sclerosis (MS) Support Group

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OK Don't Understand This????

deleted_user
deleted_user
Ok got MRI results from Dr. I have no new active lessions since last MRI in 2000. Ok but I am having some new symptoms. Do they not always show up on the MRI are what? I am kind of confused to this. He thinks I am remission since I have no new lessions and no new active ones. I also do not take any meds. Is this possible are do you think I was miss dx from the beginning. I am so confused. Please let me know if anyone else is like this please.
deleted_user
deleted_user
I started having more symptons last December. Had emergency MRI's of the spine and brain. No new lesions. Just because I had no new lesions didn't mean that I wasn't still having problems.

Be sure to discuss with your doctor and make sure he is very aware of the new symptoms you are having.

Good luck

Karen
deleted_user
deleted_user
how many lesions doesn't dictate your symptoms.when your dealing with nerves anything can happen
deleted_user
deleted_user
I went 10 years without taking meds. and now take Rebif. I often thought I was misdiagnosed many times since I felt so great and MRI's never showed new lesions. I know how frustrating it is yet if you feel well and feel blessed as I do. With MS, symptoms come and go and appear so far apart at at times. If you can a second opinion may help put your mind at ease.

Hope this helps!
deleted_user
deleted_user
Well, this never happened to me before, but, one of the nurses that showed me how to inject Copaxone told me that the MRI's do not necessarily show how bad you have become. She told me that the number of spots is not equivalent to the number of symptoms that you have. I hope this helps and good luck with everything!-Lisa
deleted_user
deleted_user
Lesions don't tell the whole story Many have MRI's which show many active plaques/lesions but the individuall is doing well. Some have MRI's with very little damage but like me the person is using a wheel chair.
deleted_user
deleted_user
Hi, talk to your doctor, I am always doing this do and my husband says talk to your doctor that what he is there for, write out your questions and then go see him. It helped, I know some try to push you off but I just sit there and keep asking til I get an answer it he doesnt say anything I keep repleting the answer, Good luck, Margaret.
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