Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
Hi everyone. Just found out last week that I have RRMS. I went to my GP the beginning of May because I had been limping since March along with dizziness, numbness, pins and needles, vison problems and bladder control issues. They thought I had a brain tumor, mysthenia gravis or MS. There is a history of brain tumors in my family. My cousin died a few years ago after battling brain tumors for many years. She was in her early 40's. So that was scarey.
After the MRI, I was relieved to find out it wasn't a brain tumor. A spinal tap and evoked potentials and here I am -- definite RRMS. All the strange symptoms over the years now make sense. I think I've been living with this since 1999.
I would have went to the doctors in April but my father got very sick in March. Turned out he had untreatable liver cancer and we took him home. He came home on a Friday and passed the following Monday. I was his caregiver that weekend. The hardest thing I have ever done, but yet the best thing I have ever done.
I think my MS relapse got worse because of all the stress. After my father died, that's when all hell broke lose in my body.
So here I am....
After the MRI, I was relieved to find out it wasn't a brain tumor. A spinal tap and evoked potentials and here I am -- definite RRMS. All the strange symptoms over the years now make sense. I think I've been living with this since 1999.
I would have went to the doctors in April but my father got very sick in March. Turned out he had untreatable liver cancer and we took him home. He came home on a Friday and passed the following Monday. I was his caregiver that weekend. The hardest thing I have ever done, but yet the best thing I have ever done.
I think my MS relapse got worse because of all the stress. After my father died, that's when all hell broke lose in my body.
So here I am....
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As I sit here this morning in the pre-dawn hours and write these thoughts, I am reminded of how my wife would often wake up early to send me a text,or a link, or an I love you note that I would see when I woke up.Today is day 61 without my love of my life. I am learning to cope, and trying heal but this is truley a walk through Hell. I try to honor my wife by staying strong, but at times I feel...
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I was diagnosed with Temporal Lobe Epilepsy a couple of days ago. Apparently the Deja vu and nausea episodes I have been having for the last 7 years or so are actually seizures. Thankfully, because I have only ever had focal aware seizures I am allowed to keep my licence. However I am struggling to come to terms with the diagnosis. It doesn't really seem real. I'm interested to know how others...
huggles (southern for warm gentle hugs)
jangy/Bigouies
I would have loved to know when a loved ones were going to die before it happened. I know that sounds strange! but will leave it at that.
I am also sorry about your dx, and wow, what a year this has been! You sound like a strong person, so you will do fine I think.
Hang in there, and it you ever wish to talk, just message me anytime.
(((iTiD)))
It was a relief that the doctor told me I have MS. My first words to him after that was, "Do anything you want to. I'll be you guinea pig."
I've been with that 'tude since. I am doing good.
We brought my mom to live with us the last 3 years of her life. It was a hard time and a time that I am so glad that we had. She was here with us when she passed. You are so right about it being hard! But we are so thankful that we were able to do it this way. That was 3-4 years ago.
I am sure that stress played a huge part in all of it. I do notice stress bringing on many sx.
Didn't mean to ramble, :)
Welcome!!
I am sorry to hear about the terrible time you have been through. I really hope life starts to get a little easier now.
Take care.
Claire
sorry you have to be a member of our club but we will try to make you feel at ease...grin
im sorry to hear about your father.. but i do understand what you are saying about it being both the hardest thing you have ever done and yet the best thing you have ever done..
we did that with my mother when she passed from breast cancer...
It was much better having her pass at home than in a hospital setting...
and oh yes stress does play havoc on your body in so many different ways...sigh...
hugs
heather
On a positive note, MS is not life threatening. Is better to have MS now that to have been diagnosed and have it 10-20 yrs ago. I wish you well. Am here if you have any questions.