After trying and failing at what feels like every MS 'slower-downer' over the years the doc wants to try Tysabri. I've already tested JVC negative so I'm good to go. Just a few questions for anyone seasoned with it:
My doc wants me to infuse at his office. Do I have to or can I choose a place closer to home? (I have a fancy ms specialist that is at least 1 hour away in good traffic. I don't mind check ups every 3 months but this is a big time commitment in driving alone)
Does it take long? I'm assuming it won't be the two hour steroid fiasco I've done time and time again but realistically - from in office to home, what's your average?
If you stopped abruptly, may I ask why? And what was decided next?
What's the 'worst' part in your experience? Side effects? Nasty overweight know it all nurses (jk)?
Any long term ones either?
Any advice for my first few times? Before or after care? Tips or tricks?
I've been procrastinating starting this but I need to 'pull up a sleeve and be a big girl' -lol
Doc says this med is very strong and should have the best benefits for the least hassle. Since my Dr does not have MS and could t walk a block in my shoes without blisters, I'd like to know the truth from anyone who is on it or has taken it before.
This treatment makes me nervous & I don't know why.
I don't mind needles but I do mind green nurses trying to find veins so big I can start the IV myself! Hahaa
Maybe since I've felt like the big pharma pillow that has taken allot of awful crab drugs over the years trying to buy more time!
Thanks everyone. Have a great Holiday - if it's a big family xmas get together or a "Festivus" bag or bottle with the one you love! Make it count.