Hello everyone. I am new to the site and community. I am looking for friends who can relate to me and my sitation and understand what I am going through. I am not even sure of what is going on. Several years ago I started having symptoms that were just plain weird and off an on with no reason. I was having pin prick sensations, severe fatigue, sensations where my spine was ripping away from my back and skin. I was told at first it was migraines but I wasnt having headaches. I was later told it was fibromyalgia. I would have other pains off and on in my legs and arms. No one could explain anything. they all thought I was crazy. So I just let it go thinking it was normal with aging though I was only in my 20's. I am now in my 30's. This July I started having spasms in my leg and foot. I didnt think anyhting of it. It was just age and maybe a pulled muscle. One day we were at the movies and my lip kept twitching. I started having pin prick sensations in my face. It got so bad that is scared me and we went to the ER. They gave me a steroid shot and it went away in a few hours. Since then I still have the same feelings in my face plus twitching in my leg and arm and at times spasms in my stomach.(almost like I am pregnant with a baby kicking me). In August my right leg felt like it went to sleep. A few days later I lost all feeling in my leg and I fell. I finally got up but I was dragging my leg behind me basically. this lasted for a one day. I fell again a week later down 7 sets of stairs. My knee gave out on me. I dont have knee problems. My foot keeps having spasms. And it is all getting worse and painful. Most of these feelings last from a few hours to a few days and seem to be more painful. I went to my dr and he told me that it sounded like MS. He sent me to a neurologist. It was awful. We waited for 3 hours to see him and he spent no more than 10 minutes to tell me that it was all in my head. He said that my exam was normal and he saw nothing wrong with me or any twitching. I dont twitch constantly though I do have twitching through out my body everyday but I wasnt having anyhting when I was in his office. So he said that there was nothing wrong with me. He told me that I needed to be put on antidepresants. How can he even make such a diagnosis without seeing me more than once and not knowing my life? Now even my husband said tht the doctor might be correct and it might be psychological. UGGGGG!!!. I am so frustrated and angry. I am so tired. I am a secretary and I have had times that my hands dont want to work. I have had a few episodes where my eyes blur and once I lost my perefrial vision and I ended up in a wreck.
I am so scared and I know its not from depression. Though I will say this is enough to make me depressed. I went back to my primary provider and he is sending me for a second opinion. We dont have very many doctors around here to pick from. I went four hours away for just 10 minutes to be told its all in my head.
Since then I am also having memory problems. I have episodes that I cant remember what I was doing or where I am or what I was saying. There are so many other little symptoms too.
Does everyone go through this with their doctors? I just dont see how they can be like this? But I guess they will be until they are in our shoes.
Does anyone one have any suggestions when I go see a new doctor. How should I approach him/her or how do I present my symptoms?
Well I am sorry this is so long. I guess I just needed to vent. Hope to meet lots of new friends who can relate.