Anyone have this or heard of it? Just wanted to see how many of us are out there. I finally saw my neuro ophthalmologist today and she thinks that I have a rare subtype of MS instead of the main typical MS. She called it neuromyelitis optica, which I guess again is a rare form and there are some differences. First, it only attacks the optic nerves and the spinal cord (which may be why my brain MRI is always normal), the symptoms in the spine and eyes are usually severe and don't improve episodically (uh yea), severe muscle spasms in the legs and arms that stiffen and are painful lasting several minutes several times a day are more commong in this form, and finally and most importantly, they are treated completely different (medicine wise). The good news is I guess there is a simple blood test that can test for antibodies that the Mayo Clinic has established. I had the blood drawn today and off to the Mayo Clinic it went. I should hear one way or another in two weeks. She told me that if the blood test is negative I have relapsing progressing MS and on maintenance drugs I go, if the blood test is positive (and she seems to really think that it will be) then I have this rare form neuromyelitis optica and on maintenance drugs I go, of some other sort. Either way, I am going to finally get treatment. It is just a relief to finally feel like I am on the way to really understanding what is wrong with me and get some help.
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