Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
I just received the results of my spinal tap FINALLY and am told that it was negative. Has this happened to anyone. I don't understand, my MRI was positive for MS and I have a ton of symptoms, numbness in both legs, weakness, blurry vision, numbness on the left side of my face, lack of coordination, headaches. I don't get it. Any advice?
deleted_user
if i understand this correctly, a lumbar puncture only shows elevation during an active time in your ms. I was just the opposite. my mri's have all been negative except for my optic nerve, but my LP was nuts.
deleted_user
when mine was done, they had results for 3 different factors..the first one came back ok but then the other 2 had certain enzymes, or something along those lines, which indicated MS...was your test broken down into categories?
deleted_user
I am not really sure yet. I just received a phone call. I actually go in and talk to my neuro on Monday for an apt, so hopefully I will know more then.
deleted_user
my spinal tap came back neg. also but my mri was positive. my neuro told me that sometimes if you are still early in the disease the spinal will come back neg. because of the lesions on my brain and my symptoms I was given a positive dx. of ms. I have talked to alot of people since my dx. who have ms and also recieved a neg. spinal tap. good luck.
deleted_user
Interesting... did you get put on maintenance medication even though your spinal tap was negative?
deleted_user
My mom and I have MS she was diagnosed over 10 years ago and had a negative spinal. I was diagnosed in 2004 and I had a posotive spinal.
deleted_user
yes, my neuro believes you should treat ms quickly and agressivly.
melaniemic
i also had a negative spinal tap with elevated protien levels. I think that shoild be good news that the blood brain barrier has not yet been compromised. I hope that the meds will keep me that way too. The bands in one of the tests was my doctors convincing result.
melaniemic
i also had a negative spinal tap with elevated protien levels. I think that shoild be good news that the blood brain barrier has not yet been compromised. I hope that the meds will keep me that way too. The bands in one of the tests was my doctors convincing result.
deleted_user
I haven't had the ol' lumbar puncture yet. I was still dx's by the MRI, and my symptoms. They started me on meds right away.
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