I posted this here and at the undiagnosed support group to look for answers. So here goes... Went to the doctor on Tuesday and was told that my spinal tap showed no ms. However, the neuro claims I could still have it. He says that since my MRI shows lesions I could potentially still have it. And just because it is not showing up on the spinal tap does not rule out me as not having it. He wants me to take more time off of work and go to an MS clinic to get more of a work up done. That means a long trip and an extended period of time off of work. I have missed so much time off of my job already because of this. Then I was asked to go to the U of M hospital and get some other tests done, at a dizziness clinic. A dizziness clinic really. The neuro says that he wants me to see him every month for the next 6 months and play it by ear. I just don't know if I can wait like this much longer. I have severe muscle pain in my legs and my toes go numb all of the time, sometimes I am lucky to get the feeling back. I have more episodes of dizziness and my balance is so screwed up I am getting physical therapy for it. I am getting no sleep at all and was given a med that helps me sleep and with the RLS, but that just spaces me out. I am always tired. I often get confused and can not concentrate. The whole thing is frustrating, not knowing what is wrong with me and not getting any answers. So I have gone to another doctor for a second opinion on Friday. I asked my other doctors to fax over my records and they said they would by Friday. So I get to the dr and no records. Now I have to wait for the records to be sent. I am so sick of all of this. I just feel as if there is no hope for me. I go back to the new doctor in a few weeks and will be seeing an ms specialist at MSU very soon which is better then what the other dr wanted to do at the clinic. I don't know which way to go with this and who to trust any more. It seems like the previous doctors never listen to me. They are so busy I never get a return call. I can't even get copies of my records. I am so frustrated. Sorry this is so long but I just was wondering how long will this go on and does any one have a suggestion?
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