Multiple Sclerosis (MS) Support Group

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/ Multiple Sclerosis (MS) Support Group

Lessen fatigue and flu like feeling?

deleted_user
deleted_user
I have a doc appointment coming up the first week in Dec. I have been diagnosed with Chronic Fatigue Syndrome in 2003 and told I have had that since 1978. I was told in 2005 I have MS symptoms. At my doc appointment I want to see if I can get some clear definition about the MS,...but also if I can find a way to lessen that heavy fatigue feeling or lesson that heavy flu like crappy all over body feeling. I have this long scroll of new symptoms. Fire sensations in arms and legs, speech slurring and stuttering and momentary memory loss or pauses in speech, jelly legs and or log legs....there is a long list...new is that rubber band feeling around my belly and back.

Do you think the doc will have some sort of answer for feeling less heavy fatigue or less heavy flu like crappy feeling?

Thanks and hugs Ellen
deleted_user
deleted_user
Good luck at your appointment. Have you ever had a brain/spinal MRI? I would be interested to see if an MRI shows any lesions. In my opinion, it could explain some of your symptoms - as well as show some lesions.
Sherie
Sherie
I have had all of these symptoms and more, have had 2 mri's 1 ct with and without contrast, spinal, and everything has come back negative, I would be very interested to find out what your doctor has to say to you. Please keep us informed. I have been dx'd with fibro and cfs, but I know that's not all thats going on in my body. . .just a feeling. good luck in finding answers.
deleted_user
deleted_user
Thank you both. I have had, I believe, just about all the testings in the book for MS...I did have the MRI's...both open and closed. I did some walking tests which I fell over constantly, and eye tests which I fell over constantly. The neuro did a test on my legs and feet and toes with needles and a machine. When I got my results back then I got "not enough to talk about" and because I was not in any pain (could not function well or balanced but not in pain) I was told "not enough there". That was it. That was 2005. Much worse since. My girlfriend who does have Fibro says that she thinks I have fibro. I have no clue. I'd love to know. As I see it, whether they give me a bottom line diagnosis or not....its still there whether they can figure it out or not. Just would be nice to know.

Thanks hugs Ellen
deleted_user
deleted_user
dont be suprised if you dont get any answers its all too common and unfortunate
deleted_user
deleted_user
Maybe you should see another Doctor?
deleted_user
deleted_user
time to see a new doctor, if you can, find one that knows about MS. That makes a world of difference. I was told in 2001 that I had to stop eating red meat as that caused all my symptoms. I did stop for a while and symptoms continued. Its amazing how uneducated some doctors are and unwilling to take the time to figure out whats going on. I hope you'll find answers.
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