Multiple Sclerosis (MS) Support Group

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Is it this LDN stuff?

deleted_user
deleted_user
Hi, My friend's daughter in law has MS pretty bad. She told me she is taking some type of medicine that is experimental and she thinks it's used on cancer patients. (I swore she said it was like chemotherapy) Anyways, after only a couple of treatments she says she feels great and has all kinds of energy and her fatigue is gone. Does anyone know what it is? I told her I'd like to take it and she said she thought it was only for people with advanced MS. (Guess I'm not that bad yet.) If it's that good they should offer it to everyone. Any ideas what it might be, please let me know.
deleted_user
deleted_user
i don't know of anything used for cancer patience except the interfearons avonex and rebiff but those have been around so long that they should be past the experimental stage
dnjnm
dnjnm
I was asked about a drug trial for "Campath" that has been used for cancer patients. I know that Novatrone which is also a chem drug is also used, but I have heard about this one for a while now. It is hard to tell, naybe ask her what it is.
LarryLDN
LarryLDN
Sounds like Novantrone, which is often confused with Naltrexone because it STARTS WITH AN N, AND ENDS WITH AN E

Novantrone is Chemo, causes heart attacks down the road, and really rips apart your immune system. Sure, it Works, NOW, but you pay for it later.

LDN is a capsule you get compounded into 3.0 MG Or 4.5 MG (hence, Low Dose), and has nothing to do with DRUGS. It's like a homeopathic dose that starts to help orchestrate your immune system.

Confusing NovantroneE with NaltrexonE is like confusing Cyanide with Dust.
deleted_user
deleted_user
' she is taking some type of medicine'
How can someone take a medication and they don't know its name? She doesn't know what the are putting in her body?

'she said she thought it...'
So she doesn't know what she's taking and what it's for.?
I have SPMS and there's nothing for us, I'm told.
Ask her questions:enlighten us.
deleted_user
deleted_user
Larry maybe I am not understanding what you are saying or I am reading the wrong sites but LDN is naltrexone it is not a homeopathic drug if that means from herbs and such. It is often used in higher doses for drug and alcohol rehabilitation and at the high doses needed for that can cause liver problems. Did I understand what you said or am I confused? I seems that when you get it compounded at a pharmacy they are just diluting the dose of the stronger stuff. I couln't find any information on how the drug is exactly made or where it comes from.
LarryLDN
LarryLDN
no no dilution!

They're putting 3.0 or 4.5 MG in capsules. I've seen how Skip's does it, ver impressive.

I said the dose is so small it's like homeopathic. It's not homeopathic itself, just a comparison.
LarryLDN
LarryLDN
well, I don't agree with 1.5
I got 1.5 MG pills so I can take TWO (3.0) or THREE (4.5), NEVER 1.5, well, except there was this one night I only took one by mistake.
deleted_user
deleted_user
I am thinking that your daughter took Novantrone or Cytoxin if it was an iv chemo drug. However, Methotrexate is also being prescribed for MS. It is an oral chemo drug. It is dosed at 7-10mg weekly. One has to have monthly CBC and liver function tests as these are affected by the drug. People with rheumatiod arthritis take it. This drug is taken once a week.
As far as the LDN is concerned, standard dosing for alcoholics and opiate addicts is 50mg daily. For MS it is 3-5 mg daily, hence LOW DOSE Naltrexone.
Hope this adds some clarity to this discussion.
deleted_user
deleted_user
Thanks everyone for the info. I will check with my friend again and see if she remembers what it's called and get back to you. It's her daughter in law who's taking it.
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