Multiple Sclerosis (MS) Support Group

This community is a place where members can discuss current events and weigh in on what's going on in the world.

890 Members
21,433 Posts
1 Online
Brain & Nervous System
/ Multiple Sclerosis (MS) Support Group

I go to the neuro on the 14th

deleted_user
deleted_user
I need to talk to him about starting a ABC drug but not sure which I should push for.
I was sick on Avonex all the time and Rebiff
well the shots were to painful. What is a good
one that I can take that won't affect me badly?
Also I take Vicodin for pain and I was wondering
if there is one that can last longer than 4 hours?
Eloise
Eloise
Ask your neuro about trying LDN, or low dose naltrexone. Research it first, and provide him with the information. That's what I did and my neuro. took the time to read it and thought that it looked good. So I will be taking it with my Avonex.

Sorry that the Avonex didn't work for you. I still get some minor side effects, but after 7 months, am finally getting used to it.

Good luck!
deleted_user
deleted_user
that is definitely something for me to talk to the doc about. I think it just might work. Thanks!!
deleted_user
deleted_user
I was on Avonex for a year and I had to quit because of the side effects. I take Copaxone now. It's a pain to do the shots daily, but the it's so much better than the Avonex for me. There isn't any flu like symtoms like the Avonex. Just some site reactions immediately after the shot. I chose Copaxone because it was best for me. I did a lot of research and talked to my doctor about what I thought was best. So far, so good.
ShoreT51
ShoreT51
Like you, Avonex was hell on me too. I was on it for a year and half with no benefit to me whatsoever. I even went through it twice a week for six months. The shot was incredibly painful. After a hospital stay back in January of 2003, the ER doctor switched my neurologist and he put me on Copaxone which I am still on. For me, this therapy has zero side effects and works well. I recommend Copaxone highly.
deleted_user
deleted_user
I've beenon Copaxone for about 2.5 years now. Other than just getting use to the daily shots I haven't had any problems. I choose this because it had the least side-effects.
dnjnm
dnjnm
You can also ask about Lidoderm patches to go with your shots (Rebif). I apply 1/4 of a pad 30 minutes before shot, and it numbs the area, so the shots aren't as painful!
deleted_user
deleted_user
I also go to my neuro the 14th.
I'm tired of injections. I cannot tolerate them any more.
deleted_user
deleted_user
yeah my body is getting so sensitive to the shots, it just flat out hurts. So I can understand goose. But if I have to do it to
slow this dang disease down then I will.
Thank you all for the suggestions to talk to my neuro about.
Posts You May Be Interested In
  • carrie415

    Widow/Widowers Traveling/Cruise Trips??

    Posted by: carrie415
    Last Reply: Msbklyn
    10
    I miss traveling with my husband. Has anyone found a specific site regarding cruising for widow/widowers or any sightseeing trips. Not interested in being with couples and kids,,,I realize a cruise ship will have a portion size of families and couples, but perhaps they also put together a part of the cruise ship for groups of widows/widowers????
  • joannklingaman

    Grief

    Posted by: joannklingaman
    Last Reply: lovesloons
    11
    A friend sent this to me..As far as I can see, grief will never truly end.It may become softer overtime, more gentleand some days will feel sharp.But grief will last as long as Love does - ForeverIt's simply the way the absence of your loved onemanifests in your heart. A deep longing accompaniedby the deepest Love some days. The heavy fog mayreturn and the next day, it may recede.Once again, it's...