Multiple Sclerosis (MS) Support Group

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deleted_user 06/10/2007

I need to talk to him about starting a ABC drug but not sure which I should push for.
I was sick on Avonex all the time and Rebiff
well the shots were to painful. What is a good
one that I can take that won't affect me badly?
Also I take Vicodin for pain and I was wondering
if there is one that can last longer than 4 hours?

Eloise 06/11/2007

Ask your neuro about trying LDN, or low dose naltrexone. Research it first, and provide him with the information. That's what I did and my neuro. took the time to read it and thought that it looked good. So I will be taking it with my Avonex.

Sorry that the Avonex didn't work for you. I still get some minor side effects, but after 7 months, am finally getting used to it.

Good luck!

deleted_user 06/11/2007

that is definitely something for me to talk to the doc about. I think it just might work. Thanks!!

deleted_user 06/12/2007

I was on Avonex for a year and I had to quit because of the side effects. I take Copaxone now. It's a pain to do the shots daily, but the it's so much better than the Avonex for me. There isn't any flu like symtoms like the Avonex. Just some site reactions immediately after the shot. I chose Copaxone because it was best for me. I did a lot of research and talked to my doctor about what I thought was best. So far, so good.

ShoreT51 06/12/2007

Like you, Avonex was hell on me too. I was on it for a year and half with no benefit to me whatsoever. I even went through it twice a week for six months. The shot was incredibly painful. After a hospital stay back in January of 2003, the ER doctor switched my neurologist and he put me on Copaxone which I am still on. For me, this therapy has zero side effects and works well. I recommend Copaxone highly.

deleted_user 06/12/2007

I've beenon Copaxone for about 2.5 years now. Other than just getting use to the daily shots I haven't had any problems. I choose this because it had the least side-effects.

dnjnm 06/12/2007

You can also ask about Lidoderm patches to go with your shots (Rebif). I apply 1/4 of a pad 30 minutes before shot, and it numbs the area, so the shots aren't as painful!

deleted_user 06/12/2007

I also go to my neuro the 14th.
I'm tired of injections. I cannot tolerate them any more.

deleted_user 06/12/2007

yeah my body is getting so sensitive to the shots, it just flat out hurts. So I can understand goose. But if I have to do it to
slow this dang disease down then I will.
Thank you all for the suggestions to talk to my neuro about.

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