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MS or not MS? Sometimes I wish I could just have a plain and simple YES or NO... The waiting... the worrying... Here's my story in a somewhat consolidated...
August 2005 I could not feel the touch when I scratched my collar bone.. called for Dr. Appt.
One week later Numb to the elbow.. Dr. appt. saw student Dr. who stuck me with pins while I wasn't looking to see if it was true??? To his denial.. I was not lying.. he made me bleed in numerous locations while I turned my head and told him if I felt anything... He made me come back when I could see a real doc.
One week later numb completely down the right arm to the finger tips... Saw a real doc that again pricked me and sent me off to a neurologist...
September 2005 Saw Neurologist.. by the time I got to him I had numb tingling like I am standing on a construction site while someone was drilling... that was the only way I could describe it. The weirdness it feels awkward.
We discovered when I looked down it intensified... He sent me for 1st MRI in Sept. 2005 of my spine.. Results came back with Lesion on my neck. (MRI with and w/out Contrast done)
He sent me back for MRI of Brain done (with and without contrast) I had 3 lesions that showed up. Toward the back of my brain... He said Transverse Myelitis was my diagnosis with probably MS. Said I would have to wait and see if another Leison or episode happens. He put me on a heavy steroid for a couple days to see if it would help with the tingles... it didn't...
(I did not want spinal tap... he agreed it was invasive and that MRI would give the same results)
Feb 2006 another MRI of Brain and upper neck/back area.. No changes
August 2006 another MRI the Lesion in my brain getting smaller the Lesion on neck still the same...
It had been a year at this point and I still had numbness and tingling from my neck down at this point...
November 2007 another MRI. Brain Lesions are gone ... Lesion on the spine still showing but minimized from last MRI...
My symptoms from day one... Numbness, tingling,
Shortly thereafter I had Migranes that made me vomit.. they put me on Amitriptylene which reduced them in frequency.
At my last Doctors appt with my neurologist he told me that the lesions in the brain were gone and the lesion on my neck was reduced and that I had one mild and one moderate slipped disc in my neck next to where the lesion is... He then said he feels more like the lesions now being gone could be a good sign it is MS.. so he was going to make my diagnosis Transverse Myelits with high liklihood of MS???
I went back to my regular doc because I will have to do PT for herniated discs but she is sending me for a second opinion as well.. It has been a week and I haven't been scheduled for anything... so I wait... and I read the MS boards and symptoms and I panic and freak and get nervous...
I have a tenancy to drop things because I forget I am holding something and can't feel them in my hands. I have fallen down stairs and fallen going upstairs repeatedly, I feel tired all the time... am I lazy or is this truely fatigue? I feel so tired but yet I can't sleep without tossing and turning.. I feel like I can't remember things.. more the short term things like walking to the kitchen and forgetting why I went there... or being at work and when I fill in my time sheet and I have to break it down by how much time I worked on a project I can't remember what I did that day? or a meeting that I am suppose to attend and I attend weekly and I just suddenly forget about the meeting? I was sworn in to be a notary and the lady made me repeat her and I couldn't remember more than 3-4 words at a time.. I felt like an idiot and appologized continuously and said I must have just been tired...
Those are just a few of the things that make me wonder... along with some other things that I can think back to from years ago that were weird things that happened and I had to see a doctor... They were left unexplained...
Oppinions? any similar stories?
August 2005 I could not feel the touch when I scratched my collar bone.. called for Dr. Appt.
One week later Numb to the elbow.. Dr. appt. saw student Dr. who stuck me with pins while I wasn't looking to see if it was true??? To his denial.. I was not lying.. he made me bleed in numerous locations while I turned my head and told him if I felt anything... He made me come back when I could see a real doc.
One week later numb completely down the right arm to the finger tips... Saw a real doc that again pricked me and sent me off to a neurologist...
September 2005 Saw Neurologist.. by the time I got to him I had numb tingling like I am standing on a construction site while someone was drilling... that was the only way I could describe it. The weirdness it feels awkward.
We discovered when I looked down it intensified... He sent me for 1st MRI in Sept. 2005 of my spine.. Results came back with Lesion on my neck. (MRI with and w/out Contrast done)
He sent me back for MRI of Brain done (with and without contrast) I had 3 lesions that showed up. Toward the back of my brain... He said Transverse Myelitis was my diagnosis with probably MS. Said I would have to wait and see if another Leison or episode happens. He put me on a heavy steroid for a couple days to see if it would help with the tingles... it didn't...
(I did not want spinal tap... he agreed it was invasive and that MRI would give the same results)
Feb 2006 another MRI of Brain and upper neck/back area.. No changes
August 2006 another MRI the Lesion in my brain getting smaller the Lesion on neck still the same...
It had been a year at this point and I still had numbness and tingling from my neck down at this point...
November 2007 another MRI. Brain Lesions are gone ... Lesion on the spine still showing but minimized from last MRI...
My symptoms from day one... Numbness, tingling,
Shortly thereafter I had Migranes that made me vomit.. they put me on Amitriptylene which reduced them in frequency.
At my last Doctors appt with my neurologist he told me that the lesions in the brain were gone and the lesion on my neck was reduced and that I had one mild and one moderate slipped disc in my neck next to where the lesion is... He then said he feels more like the lesions now being gone could be a good sign it is MS.. so he was going to make my diagnosis Transverse Myelits with high liklihood of MS???
I went back to my regular doc because I will have to do PT for herniated discs but she is sending me for a second opinion as well.. It has been a week and I haven't been scheduled for anything... so I wait... and I read the MS boards and symptoms and I panic and freak and get nervous...
I have a tenancy to drop things because I forget I am holding something and can't feel them in my hands. I have fallen down stairs and fallen going upstairs repeatedly, I feel tired all the time... am I lazy or is this truely fatigue? I feel so tired but yet I can't sleep without tossing and turning.. I feel like I can't remember things.. more the short term things like walking to the kitchen and forgetting why I went there... or being at work and when I fill in my time sheet and I have to break it down by how much time I worked on a project I can't remember what I did that day? or a meeting that I am suppose to attend and I attend weekly and I just suddenly forget about the meeting? I was sworn in to be a notary and the lady made me repeat her and I couldn't remember more than 3-4 words at a time.. I felt like an idiot and appologized continuously and said I must have just been tired...
Those are just a few of the things that make me wonder... along with some other things that I can think back to from years ago that were weird things that happened and I had to see a doctor... They were left unexplained...
Oppinions? any similar stories?
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